Subject: Hydrocephalus Association Newsletter - May 2011 Edition
From: "Tom Smith" <[email-masked]>
To: <[email-masked]>
Date: Mon, 9 May 2011 00:26:51 -0700

Hydrocephalus Association Newsletter - April 2011 Edition

 

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In This Issue
Donor and Fundraising Updates
Advocacy at a Glance
Hydrocephalus in the News
Hydrocephalus and the Media

Upcoming HA Events

04/16 - Rolling for a Cure   

04/18 - TTC Joins the Boston Marathon  

04/30 - Chico, CA - Support Group Meeting 

04/30 - Richmond, VA - Support Group Meeting  

Donor and Fundraising Updates

New WALK Chair Training Meeting 
On February 26th Randi Corey, Hydrocephalus Association Director of Special 
Events, taught a special training session for 13 new WALK Chairs. The seminar 
was designed to bring our new 2011 WALK Chairs together and enable them to 
share tips, hear success stories and learn how to overcome challenges, ensuring 
their events reach maximum potential.

    April 2011

Welcome to springtime.
In this issue of Pathways we feature two articles by guest writers Jilinda 
Richer and Christian Karch. We also share the Hydrocephalus Clinical Research 
Network's latest announcement in hydrocephalus research, provide news about 
WALK season and how it's ramping up and promises to be our best ever, and continue 
our series of articles in honor of Brain Awareness Week.
Again, we invite you to check all of our upcoming events. 
With warm regards,
The team at the Hydrocephalus Association 

On the Research Front

HCRN Announces the Latest Research News 

Dr. Dave Limbrick, MD, PhD, a researcher at St. Louis Children's Hospital, 
is the latest member of the Hydrocephalus Clinical Research Network and is 
conducting a study to identify bio-markers in hydrocephalus.

Read More 

Hydrocephalus in the News

Hydrocephalus Snowshoe WALK a Hit  On March 12th, Christian, Laura and Sofia 
Karch of Steamboat Springs, Colorado, hosted a Hydrocephalus Snowshoe WALK 
to raise awareness and funds for hydrocephalus research.  Read Christian's 
article about their successful and unique event.

Read More  

Brain Awareness Week: Part 2, Exploring Areas of the Brain Affected by Hydrocephalus In 
honor of Brain Awareness Week, Karima Roumila, Hydrocephalus Association's 
Community Programs Director, explores various areas of the brain affected by 
hydrocephalus. Read it here.

Read More    

A Most Unusual Christmas Party   Jilinda and Ron Richer, a husband and wife 
who both depend on medical devices made by the same company, were honored over 
the holidays as Mr. and Ms. Medtronic at the shunt manufacturers holiday party. 
Jilinda shares her story.

Read More  

Hydrocephalus and the Media

Fort Meyers Family is Raising Awareness About Hydrocephalus  
The Fort Meyers News-Press published a great article on hydrocephalus that 
featured the Plucker family and their son Evan.

Read More  

Durango Family Highlights Hydrocephalus in the News 

 ?The Brown Family of Durango, Texas, are raising hydrocephalus awareness locally.  
Read about them in the Durango Herald.

Read More  

North Carolina Family Adopts Girl with Hydrocephalus

 The Hardin Family of North Carolina adopted an Armenian girl with hydrocephalus 
who was in critical condition.

Read More  

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Hydrocephalus Association | 870 Market Street, Suite 705 | San Francisco | 
CA | 94102