Subject: Hydrocephalus Association Newsletter - June 2011 Edition
From: "Tom Smith" <[email-masked]>
To: <[email-masked]>
Date: Tue, 28 Jun 2011 20:16:20 -0700

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In This Issue
Donor and Fundraising Updates
Hydrocephalus in the News
Social Media Update
Research Update

Upcoming HA Events 

06/25 - 19th Annual Sharkfest Swim from Alcatraz
06/25 - 2nd Annual Portland Oregon HA WALK
06/25 - Chico, CA Support Group Meeting07/02 - The 5th Annual Detroit HA WALK-Run
07/10 - Miami, FL Inaugural Support Group Meeting

Donor and Fundraising Updates

TeamHydro Takes to the Bay! 
On June 25th, Team Hydro participated in the 19th annual Sharkfest Swim from 
Alcatraz to San Francisco.  This is the third year that they have participated 
in this fun and exciting event.
Their efforts raise money for the Kate Finlayson Memorial Research Grant.

 
June 2011

Dear Thomas,

Welcome to the June edition of Pathways!

We would like to take the time to apologize for the lateness of this edition 
of Pathways.  We experienced some technical challenges this month, which led 
to many delays in publication.  We thank you for your patience and are happy 
to finally get this edition into your hands.

In this edition we are highlighting some exciting news.  We are very happy 
to announce that we are taking applications for the next (3rd) round of research 
grants.  This round will target more experienced researchers and concentrate 
on expanding our knowledge of the Cerebral Spinal Fluid (CSF) dynamics.

In other news, hydrocephalus awareness is taking leaps forward and has been 
featured on ABC's Grey's Anatomy for the third time and  TeamHYDRO is once 
again heading to San Francisco Bay to raise money and awareness.  Guest bloggers 
David Carl and Debbi Buffa share insight on communication and travel for people 
with hydrocephalus; on a sad note, the entire hydrocephalus community mourns 
the loss of Salomon Hakim, a true giant in the realm of hydrocephalus treatment 
and research.   

 With warm regards,
 The Team at the Hydrocephalus Association

Hydrocephalus in the News

HA Announces Criteria for New Round of mid-career Research GrantsThe Hydrocephalus 
Association is pleased to announce the request for applications (RFA) for the 
next round of direct funding for hydrocephalus research. This new round of 
research grants will focus on projects focused on cerebrospinal fluid (CSF) 
production, flow and regulation. 

Read More

HA Mourns the Passing of Dr. Salomon Hakim

The Hydrocephalus Association joins the medical community in mourning the loss 
of Dr. Salomon Hakim.  Dr. Hakim defined Normal Pressure Hydrocephalus and 
dedicated his life to the treatment of hydrocephalus. 

Read More 

Hydrocephalus Support, Education and Fun at the Children's Hospital and Research 
Center in Oakland, CA 

The Hydrocephalus Association was represented by Karima Roumila and Jordan 
Faigen at the Oakland Children's Hospital annual Hydrocephalus Festival.  Many 
patients and their families from all over Northern California gathered together 
to share in their common struggle with hydrocephalus.

Read More  

Hydrocephalus Resource Library Keeps GrowingThe Hydrocephalus Resource Library 
 is a unique resource for our community and it's growing every day as more 
medical and scientific articles are added to the collection.  Every week questions 
arise about different aspects of hydrocephalus, the support and education team 
highlights the articles pertaining to those questions.

Read More

Hydrocephalus and the Media

 

HA's Acting CEO Rick Smith gives helpful hints on how you, a member of our 
hydrocephalus community, can reach out to the media and educate them while 
helping to bring hydrocephalus forward into the national spotlight. 

Read More

Congresswoman Giffords Shunted

As a result of the near fatal shooting that took place on January 8th, Congresswoman 
Giffords has received a permanent shunt to help cope with her injuries. We 
all wish her well.

Read More

Workplace Communication

David Carl, job coach and guest blogger has written an article giving tips 
and insight into the special nature of communication in the workplace for people 
with disabilities.

Read More

Hydrocephalus on Television

    

Hydrocephalus has made its third appearance on ABC's Grey's Anatomy.  The HA 
has issued a call to action to its membership to use this occasion to raise 
awareness of hydrocephalus.  

Read More

HA Participating in CFC

Once again, the HA is participating in the Combined Federal Campaign which 
allows federal employees to donate to the cause of their choice through their 
payroll.  

Read More

Social Media Update

From Facebook: 

FROM OUR PAGE ON FACEBOOK: We asked our community "If  you are planning to 
travel this summer have you inquired about neurosurgeons in the area you are 
visiting, in case of an emergency?" 

 

Related to this topic, Debbie Buffa, HA Board member, support group leader 
and mother of two daughters with hydrocephalus, wrote a wonderful blog sharing 
her experiences and knowledge on traveling while living with hydrocephalus.

Read More 

On the Research Front

Clarifying Research Terms  

With research coming so much into the HA's focus, Donna Shaffer, Research Associate 
has written a piece describing the differences between various forms of research 
being pursued. 

. 

Read More 

Hydrocephalus Association | 870 Market Street, Suite 705 | San Francisco | 
CA | 94102