Subject: It changed my life, it could change yours:
From: "Elana Simon, Massachusetts" <[email-masked]>
To: <[email-masked]>
Date: Tue, 03 Feb 2015 16:46:39 -0600

Fibrolamellar hepatocellular carcinoma.

It's not a term that any kid typically knows, or should ever have to learn first-hand. But when I turned 12 years old, that was my diagnosis -- and it became a defining part of my life.

It's a specific kind of liver cancer that affects children. It's rare -- you don't see it in your average patient. So I knew, even then, that it would take something more than a generic treatment to cure this unique disease.

So I got to work. And thanks to incredible technological advances and the help of a community of scientists and fibrolamellar patients like me, I was able to identify the change in the DNA that leads to this kind of cancer. Rather than focusing broadly on all liver cancer, I examined a precise patient group -- which allowed for such a precise discovery.

Today, I'm 19 years old, in college, and in remission.

There's a name for the approach we used. It's called "Precision Medicine" -- an approach that uses data-driven treatments that are unique to your own body. It's a proven way to treat more difficult diseases. And it's a field of medicine the President's 2016 budget is investing in.

http://click.mail.whitehouse.gov/?qs=03092b228bdfab9e11ec5cd439469731361f0cbea67e550efaa32cf20c0fd00973e1b7d86045c75f 
Learn more about the President's Precision Medicine initiative and why these tailored treatments are going to be more successful. 

Think about it: If you need glasses, you aren't assigned a generic pair. You get a prescription customized for your eyes. If you need a blood transfusion, you get one that matches your precise blood type. Treatments for diseases like cancer, cystic fibrosis, and diabetes should be no different.

Thanks to the Precision Medicine approach, my colleagues and I are developing the first diagnostics tests and new clinical trials for fibrolamellar hepatocellular carcinoma. I showed the President our progress when I attended the White House Science Fair last year. And I was proud to stand with the President when he appealed to Congress to help medical professionals translate the success of Precision Medicine to a larger scale.

It will take all of us -- patients, hospitals, industry, philanthropies, researchers, privacy experts, and congressional leaders -- to take the lead in the future of medicine. The President's budget investments in Precision Medicine is the first place to start.

http://click.mail.whitehouse.gov/?qs=03092b228bdfab9ea39f46d608e28abf161eb8affcc20f6d8ea7110b5f7fe3c9ce36280e8a8dfefa 
Learn more about this exciting initiative and then share the news with your friends and families. 

Because this new way of looking at care -- and cures -- could change your life. It certainly changed mine.

Thanks for listening,

Elana

Elana Simon

Cambridge, Massachusetts

http://click.mail.whitehouse.gov/?qs=03092b228bdfab9eb66e41da793a878341f6b1ae20632186bc01d5ca749ac5404e8a16db4100a622 

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