Subject: March ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Tue, 01 Mar 2016 11:47:33 -0500

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Upcoming Events: <https://www.alsphiladelphia.org/calendar-of-events?srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>

4 on 4 for a Cure: "Sweet 16th Appiversary"
Mar 7th, 8th, 10th, 14th, 15th
Plymouth Meeting, PA
Hot Chocolate
Thu Mar 10th
Camden, NJ
24th Annual Billy Lake Memorial ALS Beef and Beer
Fri Mar 18th
Havertown, PA
For Our Heroes 5K
Sat Mar 19th
Woodside, DE
4th Annual ALS Craft/Vendor Show
Sat Apr 2nd
Birdsboro, PA
Joe Schwartz '83 Memorial 3K Run/Walk
Sun Apr 24th
Haverford, PA
2nd Annual One Particular Phlocking
Fri Apr 29th - Sun May 1st
Fogelville, PA
ALS Family Trip to Longwood Gardens
Sun May 1st
Kennett Square, PA
View all events...
<https://www.alsphiladelphia.org/calendar-of-events?srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>
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Wow! Each year, we find ourselves busier than ever before in our work at the Greater Philadelphia Chapter to end ALS. When we put together this month’s newsletter, everyone was amazed at how many projects are going on at once to help us reach our goals. From impressive research to big names coming to our events to awards, advocacy, and more, we are fully engaged in The ALS Association mission. Check out our latest news and find more ways to get involved at www.alsphiladelphia.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.

	* Our Annual Hot Chocolate event takes place next Thursday, March 10 at Adventure Aquarium. In addition to having Preston Elliot from WMMR 93.3 emcee, Dr. Jill Yersak will give a special update to VIP guest about the latest in ALS research, we will have the famous chocolate fountain and many other chocolate treats, and Hot Hot Hot Entertainment will provide fantastic music. Reserve your spot at www.alshotchocolate.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alshotchocolate.org&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827> now.
	* Dr. Zach Simmons and the team at Penn State Milton S. Hershey Medical Center are embarking on an extensive research initiative with help from our Chapter. Each month, we are helping them educate families about their projects and let people know how they can get involved. This month, Dr. Simmons writes about his associate Dr. Andrew Geronimo and his work on Brain Computer Interface. Read more at www.alsphiladelphia.org/researchcollaboration <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.
	* The Chapter’s Walk to Defeat ALS Program won two awards at the national ALS Association Leadership Conference! We are very proud of our events team for winning top grossing walk program for our market and the Returning Champions Award. In other big walk news, Dr. Craig Hillemeier, Dean, CEO, and Senior Vice President for Health Affairs at Hershey Medical Center, has signed on as the Corporate Recruitment Chair for the Hershey Walk to Defeat ALS. Now is the time to register your team for a walk near you. Sign up at www.gpcwalktodefeatals.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.
	* Advocacy Day registration is live. Every year, our Chapter has one of the biggest delegations of ALS families in Washington, DC. Join us May 8-10 by visiting www.alsa.org/advocacy <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fadvocacy&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827> or email [email-masked] <mailto:[email-masked]> to learn more. We will be holding our annual Pennsylvania Advocacy Day in Harrisburg on Wednesday, May 18, and we hope you can participate in that as well.
	* Today is the last day to vote to choose our new chapter t-shirt design. We have a lot of really amazing options that our supporters created. Click here to vote on Facebook. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia%2fposts%2f10153942993264281&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>
	* The annual Phillies Phestival is coming up on June 9 and you can already get involved by becoming a sponsor and placing your name or business in the ad book. This year’s Phestival will be extra special as it occurs on draft day and media will be at Citizens Bank Park to see who the Phillies will choose. To find out how you can get involved, email [email-masked] <mailto:[email-masked]>.
	* We have a lot of great stories and podcasts with guests sharing their own personal experiences with ALS. You can find our blog posts, including a touching letter from Chapter President Ellyn Phillips, at our Medium.com site <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827> and of course listen to our Podcast series on iTunes or at www.alsphiladelphia.org/podcasts <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fpodcasts&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.
	* One person in particular who shared his story on our podcast is Bob Grimes, whose wife Despina is living with ALS. Bob talked about the importance of our Howard I. Abrams In-Home Care Program. Support this program now at www.alsphiladelphia.org/abrams <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fabrams&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.
	* Our Volunteer of the Month for March is Greg Zarmarian, who has stepped up to help in every way he can at multiple events. Volunteers like Greg are an incredible asset to our Chapter. Read his story at http://www.alsphiladelphia.org/gregzarmarianvotm <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fgregzarmarianvotm&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.
	* The students at Colonial Middle School are celebrating the 16th year of the 4 on 4 for a Cure Basketball Marathon with what they call a Sweet 16 Appiversary. Their work is really strong and creative. Find out how you can help by clicking here to see their Facebook page. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2f4on4foracure%2f&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>
	* The Greater Philadelphia Chapter has been selected as a Charity Partner and Beneficiary of the 2016 Constellation Senior Players Championship. They need volunteers to represent our Chapter from June 7-12 at the Philadelphia Cricket Club. If interested, email [email-masked] <mailto:[email-masked]>.
	* Finally, we all want to extend a big CONGRATULATIONS to two members of our Chapter Staff. Last month, Wendy Barnes, LSW, celebrated her 10 year anniversary with the Chapter and Alisa Brownlee, ATP, celebrated an incredible 20 years of work with us. They are both invaluable assets to our mission and we are grateful for all that they do for ALS patient care.

Thanks to all of you who help make our Chapter strong and continue to support our work to end ALS. You can find even more ways to help at www.alsphiladelphia.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org&srcid=44043&srctid=1&erid=10244916&trid=8e92484e-6a33-4a35-abfd-c76d7c70e827>.

Your friend,
Jim Pinciotti

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
	
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