Subject: April ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Tue, 05 Apr 2016 08:57:09 -0400

View web version of this email <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>	 <https://www.alsphiladelphia.org/donate?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>	

Upcoming Events: <https://www.alsphiladelphia.org/calendar-of-events?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>

4th Annual ALS Craft/Vendor Show
Sat Apr 2nd
Birdsboro, PA
The ALS Association Night at the SWB RailRiders
Sat Apr 16th
Moosic, PA
Joe Schwartz '83 Memorial 3K Run/Walk
Sun Apr 24th
Haverford, PA
The Conshy 5K
Sun Apr 24th
Conshohocken, PA
2nd Annual One Particular Phlocking
Fri Apr 29th - Sun May 1st
Fogelville, PA
8th Annual Team Scamuffa ALS Car Show Benefit
Sat Apr 30th
Wagontown, PA
ALS Family Trip to Longwood Gardens
Sun May 1st
Kennett Square, PA
Lakewood Walk to Defeat ALS
Sat May 7th
Lakewood, NJ
ALS Association and Team Gleason Fundraiser Event Fighting The Fight
Sat May 7th
Lititz, PA
Step Up to the Plate
Tue May 17th
Various locations
Northeast PA Walk to Defeat ALS
Sat May 21st
Moosic, PA
ALS/MS Charity Golf Classic presented by Bayada
Mon May 23rd
Wilkes-Barre, PA

Hershey Walk to Defeat ALS presented by Penn State Milton S. Hershey Medical Center
Sat Jun 4th
Hershey, PA
kickbALS & Picnic in the Park
Sat Jun 4th
Green Lane, PA
Phillies Phestival
Thu Jun 9th
Philadelphia, PA
Ride to Defeat ALS - ALS Express
Sat Jun 18th
Wildwood, NJ
4th Annual Lou’s Grand Slam 5K/10K
Sat Aug 6th
Lewisberry, PA
Rehoboth Beach Walk to Defeat ALS
Sat Sep 10th
Rehoboth Beach, DE
Ocean City Board...Walk to Defeat ALS
Sat Sep 17th
Ocean City, NJ
25th Anniversary Billy Lake ALS Basketball Marathon
Sat Oct 15th
Haverford, PA
Lehigh Valley Walk to Defeat ALS
Sat Oct 15th
Allentown, PA
Greater Philadelphia Walk to Defeat ALS
November, 2016
Philadelphia, PA

Become an advocate in:
Pennsylvania <https://www.alsphiladelphia.org/PA-advocacy?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Delaware <https://www.alsphiladelphia.org/DE-advocacy?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
New <https://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> Jersey <https://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>

Visit our site:
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Chapter Newsletters <https://www.alsphiladelphia.org/newsletters?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Kidsletters! <https://www.alsphiladelphia.org/newsletters?srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Blog Because You Can <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fblog-winter-2013%2f2014&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>

Join us elsewhere:
Be a part of our ALS community on Facebook and Twitter!
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Now that Spring is finally upon us, it is time to spring into the fight against ALS. May is ALS Awareness Month, so now is the perfect time to make your plans to get involved with an ALS event or program. The ALS Association is active with multiple walks, advocacy, research, bike ride and more. We hope to see you and your family at an event this spring.	
Walk to Defeat ALS season just one month away!

The Chapter’s first Walk to Defeat ALS events of 2016 are now just a few short weeks away and we need you to join us by registering online or supporting a walker or team at www.gpcwalktodefeatals.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>. There are walks in Lakewood, NJ and Northeast Pennsylvania in May with the Hershey Walk in early June. Sign up your team today!
Register now for 2016 ALS Advocacy Days

We are just weeks away from ALS Advocacy Days in Washington, DC. Your stories over the years have convinced Congress to invest millions of dollars in ALS research. Join us in Washington, D.C. May 8-10 by registering at www.alsa.or/advocacy/ <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.or%2fadvocacy%2f&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> and join us in Harrisburg, PA on May 18 by emailing [email-masked] <mailto:[email-masked]> to make your voice heard on the state level.
New ALS stories and Podcasts

The ALS Association Greater Philadelphia Chapter Podcast is leading the way in ALS awareness with our regular Podcast series and Medium.com blog posts. This month we had stories and podcasts from Tom Giordano, Jr., Brent Schneider, Dan Quinn, Chris Scofield, Philly Philms, and more. Listen to our podcasts <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fpodcasts&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>or search on iTunes @alsphiladelphia and click here for our blog posts. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Volunteers of the Month: Sydney and Riley Kaplan

Sydney and Riley Kaplan have been involved with the ALS cause for literally their entire lives. From helping at the Ride to Defeat ALS to setting up their own fundraiser at Skyzone, these young people are amazing all-stars. Read why at: http://www.alsphiladelphia.org/kaplansvotm <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fkaplansvotm&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Amazon Smile is your Shopping Destination to Fight ALS
If you use Amazon for personal or business shopping, don’t miss this opportunity! Take advantage of the Amazon Smile program at www.amazon.com <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.amazon.com&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> and choose The ALS Association Greater Philadelphia Chapter as your charity to support the fight against ALS with your online purchases. Make the most of this program today and tell your friends!
Research Updates

This March, The ALS Association announced over $ 2,000,000 in research grants to find new treatments and improve clinical trial designs. The Association also announced new genetic findings and partnerships. Read more at: http://www.alsa.org/research <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fresearch&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>

Exciting Phillies Phestival news

The Philadelphia Phillies have the number one pick in this year’s MLB draft. National media will be at Citizens Bank Park when they make their draft pick. This historic moment happens to be on the same date as this year’s Phillies Phestival – June 9, 2016! To be a part of the Phestival adbook, email [email-masked] <mailto:[email-masked]>
Save the Date for Step Up to the Plate!

Every year, restaurants throughout our area open their doors and menus to promote the ALS cause for Step Up to the Plate. Visit participating restuarants in the greater Philadelphia region on Tuesday,May 17. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fstepup&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> Make your lunch ordinner plans now so that you can bring your family and friends and help raise money and awareness to fight ALS. CURE ALS T-shirt on sale now

The Chapter ran a t-shirt design contest on Facebook and the winning designed shirt is now available on Booster! John Crawford, who lost his father to ALS, came up with the very awesome image to CURE ALS. Order your shirt today at www.booster.com/alsphilly <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.booster.com%2falsphilly&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> 
Latest Hershey Research Collaboration

Dr. Zach Simmons and his colleagues at Hershey Medical Center continue to explore new avenues of ALS research. This month, they are focusing attention on how ALS affects speech and educating people about telemedicine. Learn more about the studies. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2f%2fhttp%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Join Dr. Simmons at the Hershey Walk to Defeat ALS presented by Penn State Milton S. Hershey Medical Center on June 4. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1150358&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> 
Ride to Defeat ALS listed as a Top Charity Bike Ride

Be Well Philly once again listed the Ride to Defeat ALS as a top charity bike ride in the area. Don’t just read about this ride, register your team and join us in Wildwood, NJ. Riders get tickets to enjoy Morey’s Piers at the end point! Sign up today! <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.als-express.org&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579>
Greater Philadelphia Chapter Joins the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Stay tuned for more information on how to run for our cause! 
Constellation SENIOR PLAYERS Championship
The Greater Philadelphia Chapter is thrilled to announce being named as one of the charity partners and beneficiaries of the prestigious Constellation SENIOR PLAYERS Championship, one of the five major championships on the PGA TOUR Champions. Mark your calendar for June 9-12, 2016 to catch some of the most legendary players in golf compete for the Sam Snead Trophy at the newly restored Wissahickon Golf Course at Philadelphia Cricket Club, in Flourtown, PA. Involvement opportunities abound including a wide range of sponsorship packages to entertain clients, volunteer duties, etc.
If you are interested, please contact Jeff Cline at 215-664-4127 or [email-masked] <mailto:[email-masked]>. 
New Named Funds

This month, the Chapter announced two new Named Funds. Wellington Ow established the Emily Ow Memorial ALS Research Fund in memory of his wife who passed away of ALS last year.
The Eric and Amy Berg and Family established the Eric Berg Named Fundin honor of Eric who is living with ALS. This fund will benefit the Durable Medical Equipment Program. Email [email-masked] <mailto:[email-masked]> to learn more.
Baldwin School Students Lead on ALS Inventions

Alisa Brownlee,our Chapter's Assistive TechnologySpecialistsat on a panel listening to projects from students at The Baldwin School for their Invention Convention. Each team made an invention to help people with ALS. The YouTube streaming was archived and can be found here. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fwatch%3fv%3d3qzqrnX205I&srcid=44099&srctid=1&erid=10409410&trid=67c2a3f1-40f9-4333-b962-56432ce14579> 
ALS Outing to Longwood Gardens

Every year, the Chapter hosts an ALS Family Outing to Longwood Gardens with a lunch so that ALS families can have a relaxing day together. This year we are holding the Longwood Gardens outing on Sunday, May 1. If you’ve never participated before, or you have and know how nice it can be, email [email-masked] <mailto:[email-masked]> to be a part of this year’s outing. We hope to see you there!    

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
	
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