Subject: ALS Awareness Month
From: "Jim Pinciotti" <[email-masked]>
To: "Hunter Biden" <[email-masked]>
Date: Thu, 05 May 2016 10:00:33 -0400

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Upcoming Events: <http://www.alsphiladelphia.org/calendar-of-events?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>

Lakewood Walk to Defeat ALS
Sat May 7th
Lakewood, NJ
ALS Association and Team Gleason Fundraiser Event Fighting The Fight
Sat May 7th
Lititz, PA
Step Up to the Plate
Tue May 17th
Various locations
Northeast PA Walk to Defeat ALS
Sat May 21st
Moosic, PA
ALS/MS Charity Golf Classic presented by Bayada
Mon May 23rd
Wilkes-Barre, PA

Hershey Walk to Defeat ALS presented by Penn State Milton S. Hershey Medical Center
Sat Jun 4th
Hershey, PA
kickbALS & Picnic in the Park
Sat Jun 4th
Green Lane, PA
Phillies Phestival
Thu Jun 9th
Philadelphia, PA
Ride to Defeat ALS - ALS Express
Sat Jun 18th
Wildwood, NJ
ALS Family Trip to Longwood Gardens
Sun Jun 26th
Kennett Square, PA
4th Annual Lou’s Grand Slam 5K/10K
Sat Aug 6th
Lewisberry, PA
Rehoboth Beach Walk to Defeat ALS
Sat Sep 10th
Rehoboth Beach, DE
Ocean City Board...Walk to Defeat ALS
Sat Sep 17th
Ocean City, NJ
25th Anniversary Billy Lake ALS Basketball Marathon
Sat Oct 15th
Haverford, PA
Lehigh Valley Walk to Defeat ALS
Sat Oct 15th
Allentown, PA
Greater Philadelphia Walk to Defeat ALS
November, 2016
Philadelphia, PA

Become an advocate in:
Pennsylvania <http://www.alsphiladelphia.org/PA-advocacy?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
Delaware <http://www.alsphiladelphia.org/DE-advocacy?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
New <http://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e> Jersey <http://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>

Join us elsewhere:
Be a part of our ALS community on Facebook and Twitter!
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May is ALS Awareness Month, but it is our goal to raise awareness of the challenges of ALS all year long. The Greater Philadelphia Chapter is very active this month in fighting ALS on all fronts. Next week, hundreds of ALS advocates from across the country will be in Washington, DC for Advocacy Day. Make sure to follow along on Twitter with #ALSAdvocacy. Contact Tony Heyl at [email-masked] <mailto:[email-masked]> to sign up for Advocacy Days in Washington, DC from May 8-10 or in Harrisburg on May 18. Don’t forget that one of the best ways to raise awareness of ALS is to share your personal story. If you have a story that tells what ALS means to you, email [email-masked] <mailto:[email-masked]>. Read our recent stories <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2f&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e> about J. Brooks Joyner, Michael Fulginiti, and the Donnelly family and listen to podcasts <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2f&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e> from people like Violet Graham of the Paralyzed Veterans of America, Cory Walts of Haverford College, and Chapter President Ellyn Phillips with State Representative Bryan Cutler.
Walk to Defeat ALS season starts this month

Get involved by registering fora Walk to Defeat ALSonline <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>. There are walks in Lakewood, NJ and Northeast Pennsylvania in May with the Hershey Walk in early June. Sign up your team today! Even one person can make a difference.
Over 200 CURE ALS Shirts sold Buy Yours Today!

John Crawford created this amazing CURE ALS design in loving memory of his father and we have now sold over 200 shirts! Order your shirt today at www.booster.com/alsphilly <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.booster.com%2falsphilly&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e> Listen to John’s story about caring for his father. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2fe%2fepisode-67-john-crawford%2f&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>Purchase soon because these shirts are only available for sale until May 15.
Still Time to Register for the Ride to Defeat ALS

Teams and riders of all abilities are getting excited for the Ride to Defeat ALS on Saturday, June 18. Don’t miss one of the best charity rides in the Philadelphia area. Each rider receives two complimentary passes to Morey’s Piers Amusement and Water Parks - See more at www.als-express.org <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.als-express.org&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>.
You can help an ALS family immensely

Wheelchairs, recliners, commodes, ramping, stair glides…these items make a very real difference in the lives of an ALS family and so can you – by giving to our Chapter’s Marjorie Shimer Durable Medical(DME) Program and Accessibility Program, your gift will go twice as far because Dale Shimer is matching all gifts up to $ 25,000! Contribute now at www.alsphiladelphia.org/Shimer-Accessibility <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fShimer-Accessibility&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>.

Latest Hershey Research Collaboration

Dr. Zach Simmons and his colleagues at Hershey Medical Center continue to explore new avenues of ALS research. This month, they are working on mindfulness and they have news on their brain computer interface work. Learn more about the studies. <http://www.alsphiladelphia.org/researchcollaboration?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
Join Dr. Simmons at the Hershey Walk to Defeat ALS presented by Penn State Milton S. Hershey Medical Center on June 4. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1150358&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
 
Research Updates

Last month, The ALS Association announced research news about innovative ALS biomarkers, mouse models for the most common genetic cause of ALS, and interim trial results for the drug Masitinib. Read more. <http://www.alsphiladelphia.org/research-news-archive?srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
Phillies Phestival Tickets Now on Sale!

It’s time to get your tickets for the 2016 Phillies Phestival! This year’s Phestival takes place at Citizens Bank Park on Thursday, June 9, the same day as the MLB draft. Click here for tickets. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fphiladelphia.phillies.mlb.com%2fphi%2fcommunity%2fphestival&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e> 
Step Up to the Plate to Fight ALS!

Each year, local restaurants Step Up to the Plate to raise money and awareness for the ALS cause and this year, we have more restaurants participating than ever. Make your reservation at a fine location on Tuesday, May 17. Find a great place to eat and raise money to fight ALS. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fstepup&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>
Volunteer of the Month: Joy Young

Joy Young lost her mother to ALS many years ago and today is doing all that she can to bring comfort and support to people living with ALS throughout the region. Read about what inspires her and the work she does. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fjoyyoungvotm&srcid=44466&srctid=1&erid=10644893&trid=b93210a1-fb76-4085-9269-ce19b73f9e7e>

Greater Philadelphia Chapter Joins the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Stay tuned for more information on how to run for our cause! 
Constellation SENIOR PLAYERS Championship

The Greater Philadelphia Chapter is thrilled to announce being named as one of the charity partners and beneficiaries of the prestigious Constellation SENIOR PLAYERS Championship, one of the five major championships on the PGA TOUR Champions. Mark your calendar for June 9-12, 2016 to catch some of the most legendary players in golf compete for the Sam Snead Trophy at the newly restored Wissahickon Golf Course at Philadelphia Cricket Club, in Flourtown, PA. Involvement opportunities abound including a wide range of sponsorship packages to entertain clients, volunteer duties, etc.
If you are interested, please contact Jeff Cline at 215-664-4127 or [email-masked] <mailto:[email-masked]>. 
Thornton Township Honors Mark Kelly

Thornton Township in Delaware County, PA established a Volunteer of the Year Award in honor of Mark Kelly, a person with ALS who passed away and who was a friend of many at the Chapter. In addition to recognizing a member of the community with this award, this award will include a donation to the Chapter each year.

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
	
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