Subject: June ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Wed, 01 Jun 2016 10:00:08 -0400

View web version of this email <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	 <https://www.alsphiladelphia.org/donate?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	

Upcoming Events: <https://www.alsphiladelphia.org/calendar-of-events?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>

Hershey Walk to Defeat ALS presented by Penn State Milton S. Hershey Medical Center
Sat Jun 4th
Hershey, PA
kickbALS & Picnic in the Park
Sat Jun 4th
Green Lane, PA
Phillies Phestival
Thu Jun 9th
Philadelphia, PA
Ride to Defeat ALS - ALS Express
Sat Jun 18th
Wildwood, NJ
ALS Family Trip to Longwood Gardens
Sun Jun 26th
Kennett Square, PA
BlueClaws ALS Awareness Game
Fri Jul 22nd
Lakewood, NJ
4th Annual Lou’s Grand Slam 5K/10K
Sat Aug 6th
Lewisberry, PA
Rehoboth Beach Walk to Defeat ALS
Sat Sep 10th
Rehoboth Beach, DE
Ocean City Board...Walk to Defeat ALS
Sat Sep 17th
Ocean City, NJ
25th Anniversary Billy Lake ALS Basketball Marathon
Sat Oct 15th
Haverford, PA
Lehigh Valley Walk to Defeat ALS
Sat Oct 15th
Allentown, PA
Greater Philadelphia Walk to Defeat ALS
November, 2016
Philadelphia, PA

Become an advocate in:
Pennsylvania <https://www.alsphiladelphia.org/PA-advocacy?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
Delaware <https://www.alsphiladelphia.org/DE-advocacy?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
New <https://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> Jersey <https://www.alsphiladelphia.org/NJ-advocacy?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>

Join us elsewhere:
Be a part of our ALS community on Facebook and Twitter!
<https://www.alsphiladelphia.org/page.redir?target=https%3a%2f%2fwww.facebook.com%2fALSPhiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	 <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2ftwitter.com%2falsphiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	
<https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2falsphiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	 <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.pinterest.com%2falsphiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	
<https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2finstagram.com%2f%23alsphiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	 <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.tumblr.com%2f&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>	

ALS Awareness Month may be ending, but the fight against ALS continues all year long, including a very busy June. In the next few weeks, we have another Walk to Defeat ALS, the Ride to Defeat ALS, and many more events and programs coming up on the horizon. Read more below or find them at www.alsphiladelphia.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>. 	
Hershey Walk to Defeat ALS this Saturday

Our first two walks of 2016 are in the books. Thanks to the over 500 people who have walked with us to defeat ALS so far this year! Now we need you to join us for the Hershey Walk to Defeat ALS presented by Penn State Hershey Medical Center this Saturday. Register or donate today! <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.hersheywalktodefeatals.org&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>Read the story of team Ruben’s Raiders <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia%2fphotos%2fa.431551159280.194008.117607904280%2f10154213155279281%2f%3ftype%3d3%26theater&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> and a story on team Bob’s Besties. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fliving-by-dads-example-726b0eb193e0%23.nu1jfbq4t&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
Heat up the summer with the Ride to Defeat ALS

This year’s Ride to Defeat ALS is shaping up to be one of the most fun and exciting yet. With a new committee, new teams, and more awareness, we can’t wait to ride on Saturday, June 18. Join us at www.als-express.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.als-express.org&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> andread about the Fulginiti family <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fwhy-we-ride-to-defeat-als-70f2719e31ab%23.on2g24ate&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>, who are going to be a big force in this year’s ride.
New ALS stories and Podcasts

The ALS Association Greater Philadelphia Chapter Podcast is leading the way in ALS awareness with our regular Podcast series and blog posts. This month we had stories from Dale Miller, John Russo and more. Listen to our podcasts <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fpodcasts&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>or search on iTunes @alsphiladelphia and click here for our blog posts. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
Volunteer of the Month: Phil Martelli

For 25 years, the Billy Lake Basketball Marathon has been a leader in funding ALS research. St. Joe’s University Men’s Basketball coach Phil Martelli has helped make the event a success. Read about why he stays involved. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fMartelli&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
Phillies Phestival is just days away

We are now just about one week away from the biggest event of the year – the Phillies Phestival! There are some tickets remaining to meet Phillies players and even pitch in the bullpen. Get your ticket now <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fphiladelphia.phillies.mlb.com%2fphi%2fcommunity%2fphestival%2f&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>and join the best teammates around to #StrikeOutALS
Hershey Medical Center highlighted by National ALS Association

The ALS Association is funding important research around the country, including locally at Penn State Hershey Medical Center. This month, they highlighted the work of Dr. Connor on ALS and iron. Click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsadotorg.wordpress.com%2f2016%2f05%2f06%2fwhat-your-support-gives-to-researchers-an-interview-with-dr-james-connor%2f&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> to read this national profile. Learn more about Hershey Medical Center’s studies. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
Join Dr. Simmons <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1150358&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> at the Hershey Walk to Defeat ALS on June 4.
ALS Advocates Share their Stories

This May, dozens of Chapter advocates visited Washington, DC, Harrisburg, PA, and Dover, DE to make the case for supporting ALS research and services. Click here to view pictures <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia%2fphotos%2f%3ftab%3dalbum%26album_id%3d10154175957229281&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> from Washington and email [email-masked] <mailto:[email-masked]> to get involved in advocacy this summer.
Greater Philadelphia Chapter Joins the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Email [email-masked] <mailto:[email-masked]> for details.
BAYADA Home Healthcare Fights ALS

In 2012, Executive Director of ALSA Jim Pinciotti and President and Founder of BAYADA Home Health Care, Mark Baiada, forged a new partnership between our two organizations to better serve people with ALS throughout the Delaware Valley. As our partnership has continuously grown over the years, so has our resolve to support people who are in need of home health care.
BAYADA’s goal is to provide compassionate, reliable, and excellent care to all of our clients. Because people living with ALS face unique challenges, we strive to provide the highest quality specialized care they need and deserve. To ensure our home health aides and nurses are up to the challenge, we created a specialized ALS training program with assistance from The ALS Association Greater Philadelphia Chapter and National Office.
Nationally, BAYADA has donated over $ 350,000 to The ALS Association to support research, advocacy, and most importantly, client services. Together we continuously strive to leverage each other’s expertise to positively impact the lives of those we serve and their families. We look forward to growing our partnership to create a support model that can be replicated throughout the country, benefitting all people with ALS in need.
For more information, please visit www.bayada.com/als <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.bayada.com%2fals&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>.
Vote for Jeff in 2016 Constellation Senior Players Championship
Jeff Cline, our Director of Major Gifts and Planned Giving, is currently one of the top leaders in the PGA TOUR Volunteer Challenge. He can win $ 10,000 for The ALS Association by tallying the most votes! Please take time to help Jeff and the ALS community, come out as winners.

Voting is a snap and takes only 10 to 15 seconds. Here’s what to do:
1. Click here and Select Jeff Cline. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.tourchallenge.com%2fConstellationSENIORPLAYERSChampionship%2fSelectVolunteer&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>
2.Complete the brief bio, click Submit Info.  Research Updates

Last month, The ALS Association participated in the annual American Academy of Neurology meeting in Vancouver and gained a lot of new knowledge about ALS genes and research. Read a report on that meeting. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fnews%2farchive%2fnew-als-research-051816.html&srcid=44620&srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034> Read more research news here. <https://www.alsphiladelphia.org/research-news-archive?srctid=1&erid=11033088&trid=430ad3ab-73ad-438a-a7ab-389212a82034>

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
	
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