Subject: July ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Tue, 12 Jul 2016 09:06:08 -0400

Upcoming Events <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> •  Become an Advocate <https://www.alsphiladelphia.org/advocate?srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> • Donate <https://www.alsphiladelphia.org/donate?srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> View <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> in <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> Brow <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> ser <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> 	

Nearly 40 years ago, Felice Wiener founded The ALS Association Greater Philadelphia Chapter as she sought better care and support for her mother, who was living with ALS at the time. Sadly, Felice lost her own battle with ALS on Sunday, June 26. She left behind family and friends who loved her kindness and devotion to community, but she also left behind a legacy of helping others, especially those living with ALS and their families. Read more about Felice’s life. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.philly.com%2fphilly%2fobituaries%2f20160629_Felice_Wiener__L__Merion_official.html&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>

Felice’s story is a reminder of why we must continue to do all that we can to put an end to ALS for good. Read about our ongoing efforts below in our latest E-newsletter.
View Our New Chapter PSA

This Summer, the Greater Philadelphia Chapter put together a video to educate people about the realities of ALS and the services available to area families affected by the disease. Take time today to watch the video <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fwatch%3fv%3dLIKzn_JO8bw&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> and share it with your friends to let them know how everyone can live with ALS help end this disease.  Thank you Phillies!

This June the annual Phillies Phestival and the Philadelphia Phillies once again hit it out of the park to #StrikeOutALS by raising over $ 718,000 for ALS care and research. Click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia%2fphotos%2f%3ftab%3dalbum%26album_id%3d10154264725989281&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> to see 1,000 pictures from the amazing day. The Phillies went even further by surprising Richard Myers, who has ALS, on his wedding day! Click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2f6abc.com%2f1381679%2f&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> for the news clip with the Phanatic.

Larry Kaplan takes the #50in30 Challenge

Chapter volunteer Larry Kaplan is embarking on the biggest ALS Challenge EVER <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fdocument.doc%3fid%3d2905&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>. Larry is traveling to every state across America in order to complete unique challenges across the country. In lieu of buckets of icewater, Larry will be filling his buckets local to each state, such as orange juice in Florida or maple syrup in Vermont. You can watch the introduction video, track Larry’s progress and support his challenge at www.50in30.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.50in30.org&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>.

Walk to Defeat ALSgoes onall year long

Our families had a wonderful day at the Hershey Walk to Defeat ALS on June 4, raising over $ 210,000! See some of the awesome pictures <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fGPCWalktoDefeat%2f&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> on our Facebook page and then start organizing and donating now for the fall walk season <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1042636&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>. We look forward to seeing you at a walk soon! Updatesfrom Hershey Medical Center

The ALS Association is funding important research around the country, including exciting projects at Penn State Hershey Medical Center. Read more <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> about Hershey Medical Center’s studies to learn about the latest developments.
Ride to Defeat ALS Continues to BeatGoals

Over 400 riders joined the Chapter at the 2016 Ride to Defeat ALS and you helped beat all of our goals for a successful ride. Our biggest goal remains, and that is to find a cure for ALS. View pictures <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2f117607904280%2fphotos%2f%3ftab%3dalbum%26album_id%3d10154280856019281&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> from the ride and continue donating at www.als-express.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.als-express.org&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>. Volunteers of the Month: Mary Lou and Phil Lee

Nearly 20 years ago, Mary Lou and Phil Lee lost a dear friend to ALS. From the moment their friend was diagnosed, they knew that they would do something to support ALS families and help put an end to the disease. Today they are still helping throughout the year and volunteering in so many capacities. Read about this great couple. <https://www.alsphiladelphia.org/maryphilvotm?srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337>
Thank you ALS Advocates!

This year, we asked you to join us as ALS advocates and you delivered. As a result of your efforts, the Delaware legislature increased our grant application for patient care and the Pennsylvania legislature increased our line item to $ 500,000 intheir budget proposal! Email [email-masked] <mailto:[email-masked]> to get involved in advocacy now. The Annual Luncheon

The Billy Lake Community - including committed family members, friends, business leaders, colleagues, students and loved ones - has been funding ALS research through the Billy Lake ALS Basketball Marathon for 25 years. Join us in honoring their commitment <https://www.alsphiladelphia.org/luncheon?srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> at our Annual Luncheon on November 4 at noon at Loews Philadelphia Hotel.
New ALS stories and Podcasts

The ALS Association Greater Philadelphia Chapter Podcast is leading the way in ALS awareness with our regular Podcast series and blog posts. This month we had stories from JD Florio and others. Listen to our podcasts <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fpodcasts&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> or search on iTunes @alsphiladelphia and click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> for our blog posts. Your Votes Make the Difference!

Thank you for supporting Jeff Cline, our Director of Major Gifts and Planned Giving, in the 2016 PGA Tour Constellation Senior Players Championship. See his interview <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.nbcphiladelphia.com%2fnews%2fsports%2fConstellation-Senior-Players-Championship-Begins-at-Philadelphia-Cricket-Club--382384921.html&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> with NBC10's Vai Sikahema about the golf tournament and his shout out to the ALS Association Greater Philadelphia Chapter.

The Michael Bartone Memorial Foundation

Last month, The Michael Bartone Memorial Foundation reached a milestone with $ 500,000 raised for the fight against ALS. Thank you to Dom and his family and friends for their incredible dedication to the ALS cause. Un voyage fantastique

Len and Susan Lodish hit the road – this time with their grandsons – and travelled through Vermont and Canada along La Route Verde in their 21st annual tandem bike ride last month. To date, through your donations, they have raised $ 75,382 in memory of Len’s cousin, Dr. Jules Lodish. You can still give <https://www.alsphiladelphia.org/lodish?srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> and you will receive their colorful Notes and Photos from the Road.
Marjorie Shimer Durable Medical Equipment Program

Don Farrell was an Air Force veteran, a father, husband, singer, colleague and friend. He depended on the Chapter’s Marjorie Shimer Durable Medical Equipment Program (DME) and Accessibility Programs so that his loving wife Joan, his primary caregiver, could take care of his needs. Watch this video <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fwatch%3fv%3dF1PSWTbJQYI&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> and you will immediately see the importance of your donation to these vital programs. You can read more about the Programs in Dale Shimer’s Letter <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fdocument.doc%3fid%3d2883&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> and a note from Chapter Nurse Gail Houseman. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fdocument.doc%3fid%3d2866&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> An equipment description sheet <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fdocument.doc%3fid%3d2880&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> offers more examples of the equipment provided. Please give today! <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fShimer-Accessibility&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> When you do, your gift will be matched, up to $ 25,000 by Dale Shimer in memory of his beloved wife, Marjorie.
Research Updates

The ALS Association continues to fund research projects from a variety of perspectives, including new updates on stem cell therapies and a grant to develop a synthetic microRNA antagonist. Read more <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fresearch%2fresearch-news-archive.html&srcid=45066&srctid=1&erid=11417519&trid=9a7b4439-a3cc-451b-8fb3-4af5a0d88337> research news. Greater Philadelphia Chapter Joins the Philadelphia Marathon
The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Email [email-masked] <mailto:[email-masked]> for details.

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
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