Subject: August ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Thu, 04 Aug 2016 15:41:51 -0400

Upcoming Events <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> •  Become an Advocate <https://www.alsphiladelphia.org/advocate?srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> • Donate <https://www.alsphiladelphia.org/donate?srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> View <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> in <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> Brow <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> ser <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> 	

Over the past two years, The ALS Community has rallied around the summer anthem of “Every August Until a Cure.” We know that we must fight ALS not just in August, but every month until we have a cure. The many ice bucket challenges remind us that every bucket of water makes a big splash that adds up to accomplish big things for ALS research and patient care. Read the latest news on the NEK1 gene discovery funded through your Ice Bucket dollars. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsadotorg.wordpress.com%2f2016%2f07%2f22%2fnek1-gene-announcement%2f&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>

Every Drop Adds Up in the fight against ALS. So does every dollar, every walk, every volunteer hour, every hug, every smile. Learn about the #EveryDropAddsUp Campaign and get involved today. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsadotorg.wordpress.com%2f2016%2f07%2f22%2fnek1-gene-announcement%2f&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>

50 in 30 Challenge Goes National

Larry Kaplan’s 50 in 30 Challenge has begun and it is making a big splash nationwide! Already, Larry has been dumped with watermelon in Delaware, blueberries in New Jersey, and baked beans in Boston. He needs YOUR support to make his journey through all 50 states in 30 daysa success. Donate and follow along at www.50in30.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.50in30.org&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>.

Thank you ShopRite!

Each year, Village ShopRite and their customers raise money for the Ocean City Board…Walk to Defeat ALS. This year, they smashed their goal, raising over $ 95,000! Watch their video <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fwatch%3fv%3duBQPqpPD8cU&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> with 50in30 and then sign up to join them for a walk this fall at www.gpcwalktodefeatals.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>.

New ALS stories and Podcasts

In the most recent ALS Podcast, Chrissie Delaney Cohen discusses her recent trip to participate in a clinical trial. Listen <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2fe%2fepisode-73-chrissie-delaney-cohen-on-participating-in-als-research%2f&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> or search on iTunes @alsphiladelphia and click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> for our blog posts. Hershey Medical Center Focus on Telemedicine

In the latest update from Penn State Hershey Medical Center, Dr. Zach Simmons highlights their work on Telemedicine. Learn about the latest developments. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>
	
Research Presentations are Now AvailableOnline

This June, The Greater Philadelphia Chapter held a research update meeting to discuss the latest progress in ALS research. Videos from that day are now online <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearch&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> and feature speeches from Lucie Bruijn, Ph.D, Joe Lewcock, Ph.D, and Jinsy Andrews, MD. Read more research news at: http://www.alsa.org/research/ <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fresearch%2f&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>.
Volunteer of the Month:
Rosemary Mogish

Rosemary Mogish became involved with The ALS Association when her husband Michael was diagnosed in 2010. After he passed away, she decided to give back as a Visiting Volunteer to offer compassion to others. Read her story. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fmogishvotm&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f>

Greater Philadelphia Chapter Joins the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Email [email-masked] <mailto:[email-masked]> for details.
Check out Charity Miles!

The ALS Association will now be featured as a charity of choice on Charity Miles! It is a free iPhone and Android app that enables a user to earn money for charity while walking, running or biking. Simply download the Charity Miles app onto your smart phone, select The ALS Association as your charity of choice and then track your walk, run or cycle every day.Each mile completed earns money for The ALS Association. Walkers and runners earn 25 per mile; bikers earn 10 per mile. It’s that easy! For more information, please visit www.charitymiles.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.charitymiles.org&srcid=45193&srctid=1&erid=11763607&trid=9daf84c1-b7d7-4a1f-9cae-1b14c054c59f> or call Donna Cleary, Director of Annual Giving at the ALS Association Greater Philadelphia Chapter at 215-664-4133.

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
[email-masked] <mailto:[email-masked]>
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