Subject: September ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Wed, 07 Sep 2016 09:06:05 -0400

Upcoming Events <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> •  Become an Advocate <https://www.alsphiladelphia.org/advocate?srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> • Donate <https://www.alsphiladelphia.org/donate?srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> View <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> in <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> Brow <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> ser <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> 	

We just finished another exciting August promoting the fight against ALS across the country. Thank you to Larry Kaplan and all of The ALS Association Chapters who helped with the ambitious 50 in 30 Challenge. While August may be over, our mission certainly is not. We know from experience that Every Drop Adds Up. Read about all of our ongoing work <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2ffight-als%2fice-bucket-challenge.html&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> and, if you have not already, watch our PSA from Philly Philms <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fwatch%3fv%3dLIKzn_JO8bw&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> about our work to support ALS families.
50 in 30 Challenge Brings National Attention to ALS

On August 1, Chapter volunteer Larry Kaplan started a journey to travel to all 50 states to take on unique bucket challenges to fight ALS. His amazing adventure is now complete, but he is not finished working to end ALS. Donate to his efforts and watch all 50 plus videos <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.50in30.org&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f>. Special thanks to Larry’s family and friends who made this journey possible, including his wife Jill, children Sydney and Riley, and Maryellen Bowers of Cakes and Candies by Maryellen. It is time to register for Walk to Defeat ALS!

The fall 2016 Walk to Defeat ALS season is underway with big walk events this month in Rehoboth Beach, DE and Ocean City, NJ. Don’t forget upcoming walks in Lehigh Valley and Philadelphia too! Register your teams and donate now at www.gpcwalktodefeatals.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f>.
Register Now for the Annual Luncheon Honoring the Billy Lake Community

For the past 25 years, Patti Lake-Quinn and Dan Quinn have been working to fund ALS research in memory of Billy Lake. On November 4, we recognize their commitment to the ALS cause at the Annual Luncheon with Event Chair Phil Martelli, coach of St. Joseph’s University Men’s Basketball Team. Reserve your table today <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fluncheon&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f>.
Don’t forget to also join the Lake family for the 25th Annual Lake Basketball Marathon <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.billylake.com%2fmarathon.html&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> on Saturday, October 15 at Haverford College! Hershey Medical Center Joins Genomic Study

In the latest update from Penn State Hershey Medical Center, Dr. Zach Simmons discusses the center’s work on the Genomic Translation for ALS Care study, which will involve genetic sequencing from over 1,500 people with ALS from across the country. Learn about this exciting work <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f>.
New Date for the Scott Mackler 5K Run/Walk

2016 marks the 17th Annual Scott Mackler 5K Memorial Run/Walk for ALS on Sunday, November 6 in Newark, Delaware. This event has helped fund vital communication resources through the Scott Mackler Assistive Technology Program and is run through the love and support of Scott Mackler’s family and friends and those who benefited from his wisdom and kindness. Reserve your spot for this event today <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmackler5k.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1165041&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f>.
September Volunteer of the Month – Greg Gross

Greg Gross first learned about The ALS Association as a star player with the Philadelphia Phillies. Now he is instrumental in the success of the Chapter’s annual golf outing. Read his story <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fgreggrossvolunteer&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> and join us for this year’s Roger Kirk ALS Association Golf Outing Hosted by Greg Gross <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fgolf&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> on Monday, October 10.
Greater Philadelphia Chapter Joins the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to announce that we have been chosen as a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, when 30,000+ runners will participate in one of 4 main events, the Full Marathon, Half Marathon, the Rothman Institute 8K and the Kids Fun Run. Email <mailto:[email-masked]> Taylor for details <mailto:[email-masked]>. Make a Donation that Pays you an Income for Life

There are many charitable gift programs available for donors of all backgrounds. Learn how to make a donation that pays you income for life <https://www.alsphiladelphia.org/document.doc?id=2947&erid=12172847> while making a big impact on ALS care and research.

ALS Association Launches New Research Website

The ALS Association has spent the last few months creating a dynamic research website to highlight all of the progress and ongoing work from scientists around the globe to fight ALS. Check outthe special section on Genetics <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fresearch%2ffocus-areas%2fgenetics%2f&srcid=45331&srctid=1&erid=12172847&trid=626659c3-272d-400c-a2bd-f8a10047c22f> and take time to navigate through the whole research page to learn about all of the latest news on this important topic.
Workplace Giving is a Powerful Fundraising Tool
Remember The ALS Association Greater Philadelphia Chapter when you consider your workplace giving campaigns this fall. Each year, donations through workplace giving add up to over $ 60,000 for our Chapter’s mission!
Companies are gearing up for their workplace giving campaigns now and many companies will MATCH their employee donations. Giving through your workplace is an easy way to donate and help people living with ALS. Your tax-deductiblegift is deducted directly out of your paycheck and helps The ALS Association Greater Philadelphia Chapter to fund research, promote advocacy and provide patient care.
Donor Codes

By Number:

• United Way of Southeast PA - #4700
• Combined Federal Campaign - #16700
• United Way of Delaware - #2562
• PA State Employees Campaign (SECA) - #2000-002
By Name:

• Community Health Charities (CHC) Campaigns – We are a member agency.
You can designate your gift to The ALS Association Greater Philadelphia Chapter by name through Community Health Charities in state and local government campaigns, private sector campaigns, and also through the Pennsway campaign.
If you have questions please call or e-mail Donna Cleary at 215-664-4133 or [email-masked] <mailto:[email-masked]>. 

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
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