Subject: October ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "Hunter Biden" <[email-masked]>
Date: Wed, 05 Oct 2016 08:58:57 -0400

Upcoming Events <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> •  Become an Advocate <http://www.alsphiladelphia.org/advocate?srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> • Donate <http://www.alsphiladelphia.org/donate?srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> View <http://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> in <http://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> Brow <http://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> ser <http://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> 	

The leaves are changing colors and the weather is getting cooler, and that means that some of the Greater Philadelphia Chapter’s most important events are just around the corner. That includes the Walk to Defeat ALS, the Annual Luncheon, Lake Basketball, and more. We hope that you will have time to join the Chapter as we work to fight ALS together.
Now is the time to Walk to Defeat ALS

There are two big Walk to Defeat ALS events coming up in the next few weeks and we need YOU to sign up today to make them successful. The Lehigh Valley Walk to Defeat ALS is next Saturday, October 15 and the Greater Philadelphia Walk to Defeat ALS presented by BAYADA Home Health Care and Quantum is on Sunday, November 6. Register and donate now. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> Phil Martelli at our Annual Luncheon

Honoring the Billy Lake Community’s 25 Year Commitment to Fight ALS
This year’s Annual Luncheon honors the Billy Lake Community and their 25 years of working to end ALS. The luncheon chairman is long time ALS champion and friend of the Lake family, St. Joseph’s University Men’s Basketball Coach Phil Martelli. Join us on Friday, November 4th <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fluncheon&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62>. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fluncheon&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62>
Hershey Medical Center Clinical Trial Update

This month, Dr. Zachary Simmons of Hershey Medical Center invites people with ALS to participate in an ongoing study on the drug Tocilizumab to see if it is safe and effective. Learn about the latest developments. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> Running to Fight ALS in the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter is excited to be a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, and runners like Eliza Giles are prepared to fight ALS. Read Eliza’s story <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2frunning-to-strike-out-als-599124906217%23.iajubry8g&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> and email Taylor@alsphiladelphia <mailto:Taylor@alsphiladelphia> for details.
Research Presentations Now Online

This June, The Greater Philadelphia Chapter held a research update meeting to discuss the latest progress in ALS research. Videos from that day are now online <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearch&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> and feature speeches from Lucie Bruijn, Ph.D, Joe Lewcock, Ph.D, and Jinsy Andrews, MD. Read more research news <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fresearch&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62>. Final Spots Available for theGolf Outing

The Roger Kirk ALS Association Golf Outing hosted by Greg Gross takes place this Monday, October 10 at Old York Road Country Club. There are a few remaining spots available for the morning course. Don’t miss this opportunity to golf and raise money to fight ALS. Reserve your spot! <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fgolf&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62>
Volunteer of the Month: Dom Bartone

When Dom Bartone’s brother Michael was diagnosed with ALS in 1999, Dom vowed to do all that he could to put an end to the disease. Few people have worked harder at the ALS cause than Dom and the entire Michael Bartone Foundation since then. Read his story. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fbartone&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> Try the new Charity Miles Tool

Recently, The ALS Association began partnering with a new tool called Charity Miles as a fun way to raise money while you exercise. This app will you’re running to increase donations. Read more from Donna Cleary about this tool and other unique ways to raise money for the ALS cause. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fwhy-and-how-people-give-3b235efa58bd%23.7ij7rb5il&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62>
Mackler 5K Race November 6

The Mackler family has spent nearly two decades working to improve the lives of people with ALS through vital Assistive Technology programs. Join them to continue their efforts on Sunday, November 6 at Temple Beth El in Newark, DE for their annual 5K. Participate in this wonderful event with the family. <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmackler5k.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1165041&srcid=45522&srctid=1&erid=12320088&trid=6d038b9f-d031-4c56-8a7c-6bfb3557ca62> Paint Nite Fun to Fight ALS

Last month, members of the ALS Advisory Committee in South Central, PA participated in Paint Nite Harrisburg to raise money for ALS care and research while having fun with friends. The Advisory Committee is always looking for unique events to engage the ALS community and bring awareness to the cause. If you’d like to join the committee in the Hershey area, or learn more about their work, email nurse Maureen Reid <mailto:[email-masked]>.
Workplace Giving is a Powerful Fundraising Tool
Remember The ALS Association Greater Philadelphia Chapter when you consider your workplace giving campaigns this fall. Each year, donations through workplace giving add up to over $ 60,000 for our Chapter’s mission!
Companies are gearing up for their workplace giving campaigns now and many companies will MATCH their employee donations. Giving through your workplace is an easy way to donate and help people living with ALS. Your tax-deductiblegift is deducted directly out of your paycheck and helps The ALS Association Greater Philadelphia Chapter to fund research, promote advocacy and provide patient care.
Donor Codes

By Number:

• United Way of Southeast PA - #4700
• Combined Federal Campaign - #16700
• United Way of Delaware - #2562
• PA State Employees Campaign (SECA) - #2000-002
By Name:

• Community Health Charities (CHC) Campaigns – We are a member agency.
You can designate your gift to The ALS Association Greater Philadelphia Chapter by name through Community Health Charities in state and local government campaigns, private sector campaigns, and also through the Pennsway campaign.
If you have questions please call or e-mail Donna Cleary at 215-664-4133 or [email-masked] <mailto:[email-masked]>. 

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
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