Subject: November ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Thu, 03 Nov 2016 12:39:23 -0400

Upcoming Events <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> •  Become an Advocate <https://www.alsphiladelphia.org/advocate?srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> • Donate <https://www.alsphiladelphia.org/donate?srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> View <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> in <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> Brow <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> ser <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> 	

It is hard to believe, but it is already November. There are many events and opportunities to get involved in the fight against ALS this month, from the Walk to Defeat ALS® to the Annual Luncheon and more. Read about some of the activity ongoing at the Chapter and find more ways to get involved now at www.alsphiladelphia.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>.

SUNDAY – The Greater Philadelphia Walk to Defeat ALS® presented by BAYADA Home Health Care and Quantum

This Sunday, November 6 is the Greater Philadelphia Walk to Defeat ALS® presented by BAYADA Home Health Care and Quantum at Citizens Bank Park. It'sour Chapter’s biggest walk of the year. Register and donate <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> now. Click here <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fbusiness.facebook.com%2fALSPhiladelphia%2fvideos%2f10154670379454281%2f%3fpermPage%3d1&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> for a special Facebook video from our friends at Clemens Food Group about the walk and make sure to get your friends and family ready for the big day. Also, make sure to read and share <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fwalking-for-dad-walking-for-hope-201a469ff60d%23.a1tg45viz&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> the story of high school student Ava Jacobson about why she is walking in honor of her dad. FRIDAY - Join St. Joseph’s University Men’s Basketball Coach Phil Martelli at our Annual Luncheon

Honoring the Billy Lake Community’s 25 Year Commitment to Fight ALS

This year’s Annual Luncheon honors the Billy Lake Community and their 25 years of working to end ALS. The keynote speaker is long time ALS champion and friend of the Lake family, St. Joseph’s University Men’s Basketball Coach Phil Martelli. Join us on Friday, November 4th by signing up at www.alsphiladelphia.org/luncheon <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fluncheon&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>.
Hershey Medical Center Clinical Trial Update

This month, Dr. Zachary Simmons of Hershey Medical Center shares news about the latest advances in brain computer interface. Learn about the latest developments. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fresearchcollaboration&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> SUNDAY - Mackler 5K Race November 6 and New Volunteers of the Month

Honor the life of Scott Mackler this Sunday at the Mackler 5K at Temple Beth El in Newark, DE to continue the work of funding Assistive Technology. Click here to participate in this wonderful event with the family. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmackler5k.kintera.org%2ffaf%2fhome%2fdefault.asp%3fievent%3d1165041&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>Our November Volunteers of the Month are Noah and Alexander Snyder-Mackler. Click here to read their story. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fmacklervotm&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>
Running to Fight ALS

The ALS Association Greater Philadelphia Chapter is excited to be a Charity Partner for the 2016 Philadelphia Marathon. Marathon Weekend is November 18-20, and runners like Eliza Giles are prepared to fight ALS. Read Eliza’s story <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2frunning-to-strike-out-als-599124906217%23.iajubry8g&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973> and email Taylor@alsphiladelphia <mailto:Taylor@alsphiladelphia> for details. Try the new Charity Miles Tool

Recently, The ALS Association began partnering with a new tool called Charity Miles as a fun way to raise money while you exercise. This app will you’re running to increase donations. Read more from Donna Cleary about this tool and other unique ways to raise money for the ALS cause. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fwhy-and-how-people-give-3b235efa58bd%23.7ij7rb5il&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>

When given a diagnosis of ALS, most victims struggle to make peace with a 2-3 year death sentence. Joe Wions had other ideas in mind. In More Time to Love , Joe takes his readers on a journey from nightmares to miracles. Left with a hopeless prognosis in the eyes of doctors, he sets out on a quest for alternatives and discovers some surprisingly effective therapies. Determined to find a cure, Joe endures harrowing moments of decline, but eventually stumbles upon keys that unlock healing in both his body and his mind, and bring forth perspective on how to live fully, regardless of one's limitations. Insights and stories from his companions round out this detailed (and often humorous) personal account of Joe’s heroic struggle - between helplessness and strength, the physical and the philosophical, the punishing reality of ALS and the power of personal choice. More time to Love also provides resources and information for families coping with ALS and other debilitating diseases.
"My purpose in writing this book is to share my story about the impact of ALS, how I have grown from the experience, and what I have learned as a result. It is my fondest wish that this story will provide hope and inspiration to others who are fighting this devastating disease, and to anyone who is facing a formidable challenge."
Buy More Time to Love! <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmoretimetolove.com%2fstore%2f&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>
Shipments estimated by the end of December. A portion of all proceeds will be donated to The ALS Association.

For more information on Joe, More Time to Love , and the Wions family, visit www.MoreTimetoLove.com <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.MoreTimetoLove.com&srcid=45742&srctid=1&erid=12432712&trid=d198f41e-b78c-4ffb-a749-c1cec3c06973>.

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
215-643-5434
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