Subject: December ALS Bulletin
From: "Jim Pinciotti" <[email-masked]>
To: "Hunter Biden" <[email-masked]>
Date: Thu, 01 Dec 2016 16:53:44 -0500

Upcoming Events <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fcalendar-of-events&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> •  Become an Advocate <https://www.alsphiladelphia.org/advocate?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> • Donate <https://www.alsphiladelphia.org/donate?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> View <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> in <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> Brow <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> ser <https://www.alsphiladelphia.org/emailviewonwebpage.aspx?erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> 	

The year is coming to a close and the holiday season is a good reminder that our focus on ALS families continues all year long. That focus is as true today as it was when the Chapter was first founded. 2017 marks a milestone for The ALS Association Greater Philadelphia Chapter as we recognize our 40th year as an organization supporting ALS care and research. Be a part of this anniversary and join us to continue the Promise and Advance the Mission. Learn more at www.alsphiladelphia.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9>.

20th Anniversary of the ALS Treatment Center at Hershey Medical Center

Last month, we celebrated the 20th anniversary of The ALS Association Treatment Center at Penn State Hershey Medical Center. Dr. Zach Simmons and Sue Walsh, RN, have led this clinic since it was first established in 1996 and the professional staff has grown in experience and talent ever since. Thank you to everybody who has made this clinic so successful for ALS families. Listen to a podcast <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2fe%2fepisode-77-alair-altiero%2f&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> with staff psychologist Alair Altiero and nurse Maureen Reid <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2fe%2fepisode-78-maureen-reid%2f&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> as they talk about their experiences at the clinic. Make sure to read about the latest research update from Dr. Simmons on Telemedicine. <https://www.alsphiladelphia.org/researchcollaboration?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> In memory of Chapter Founder, Felice Wiener

Each year, 5,000 people are told, “you have ALS”. Last December, 43 years after her mother was diagnosed – our Chapter’s founder, Felice Goodwin Wiener, was told those very words. She started our Chapter in 1977 and can be credited with many of our successes. Sadly Felice lost her battle with ALS last June. Please give in memory of Felice and in honor of those who battle ALS at www.alsphiladelphia.org/Felice <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fFelice&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9>  where you can read a note from her children and a letter from Chapter President Ellyn Phillips.

Thank you for your #GivingTuesday donations

This past Tuesday was the annual day of charitable giving known as Giving Tuesday. Each year, we ask you to support the fight against ALS on this special day to show the community support for our cause. This year, you came through bigger than ever, raising over $ 10,000 in one day, thanks in part to a match from Permobil! Thank you to everybody who gave. Keep supporting the cause <https://www.alsphiladelphia.org/donate?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9>. <https://www.alsphiladelphia.org/donate?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> Finish Walk to Defeat ALS® Season Strong

Thanks to thousands of supporters, the Greater Philadelphia Walk to Defeat ALS® presented by BAYADA Home Health Care and Quantum raised over $ 500,000! Thank you to all who participated. You can still support a 2016 Walk team online with a gift at www.gpcwalktodefeatals.org <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.gpcwalktodefeatals.org&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> and make sure this walk season ends strong.
Thank you for being part of the Annual Luncheon

This past November, we honored the Billy Lake Community at the Chapter’s Annual Luncheon. Patti, Dan, and the whole Lake-Quinn family have helped fight ALS for the past 25 years and we are forever grateful. The Chapter also thanked the Philadelphia Phillies for their work in 2016. View photos from the event and extend your thoughts. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia%2fphotos%2f%3ftab%3dalbum%26album_id%3d10154731851484281&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> Research Podcast – What is ALS?

Dr. Jill Yersak, Manager of Research Communications at The ALS Association, is sharing her expertise in a running series on ALS research questions. In this first Podcast, Dr. Yersak starts the conversation by talking about What is ALS? This episode discusses the various forms of ALS, how it impacts the body, and some of the resources that are available through The ALS Association. Listen on iTunes or follow this link. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2fe%2fwhat-is-als-research-podcast-with-dr-jill-yersak%2f&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9>
Try the new Charity Miles Tool

Recently, The ALS Association began partnering with a new tool called Charity Miles as a fun way to raise money while you exercise. This app will work while you’re running to increase donations. Read more from Donna Cleary about this tool and other unique ways to raise money for the ALS cause. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fmedium.com%2f%40ALSphiladelphia%2fwhy-and-how-people-give-3b235efa58bd%23.7ij7rb5il&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> Another Year, Another Great Mackler 5K

The Mackler 5k held on November 6 raised over $ 75,000 for the Scott Mackler MD, PhD Assistive Technology Program. Many thanks to organizers Noah Snyder-Mackler and Alexander Mackler as well as the volunteers from Temple Beth El in Newark Delaware for another stellar effort.
Volunteer of the Month - Graeme Howard
Our December Volunteer of the Month learned personally how challenging ALS could be for a person and a family when he saw his cousin face the disease. Graeme reached out to Ellyn Phillips to learn how he could make a difference and he has helped support the Phillies Phestival and other programs ever since. Learn more about this humble and motivated volunteer for the ALS cause. <https://www.alsphiladelphia.org/howardvotm?srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> Running to Fight ALS in the Philadelphia Marathon

The ALS Association Greater Philadelphia Chapter was honored to be a Charity Partner for the 2016 Philadelphia Marathon this past November. Runners like Eliza Giles, Jennifer Patterson, Ashley Bucci and more ran to fight ALS. R <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.crowdrise.com%2fALS-PhiladelphiaMarathon&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9> ead their stories today. <https://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.crowdrise.com%2fALS-PhiladelphiaMarathon&srcid=45982&srctid=1&erid=12821920&trid=786d5c18-e186-4f9f-bacf-034e601948a9>

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The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
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