Subject: April ALS Bulletin
From: "The ALS Association Greater Philadelphia Chapter" <[email-masked]>
To: "Hunter Biden" <[email-masked]>
Date: Fri, 13 Apr 2018 15:52:33 -0400

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New Gene, New Hope

The rate of discovery of new ALS genes has greatly accelerated since the Ice Bucket Challenge with the latest finding of a new ALS gene, known as KIF5A, in March 2018. Since 2014, four other ALS genes have also been found. Knowledge of these genes allow scientists to target them for therapy, which increases the likelihood that a treatment will be found. Learn more about this new discovery. <http://www.alsphiladelphia.org/page.redir?target=https%3a%2f%2falsadotorg.wordpress.com%2f2018%2f03%2f29%2fkif5a-gene-discovery-feature-interview-with-dr-john-landers%2f&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7>

Check Out Our Podcast

Each month, the Greater Philadelphia Chapter adds new episodes to the Talk to Defeat ALS podcast. Download and subscribe on iTunes or click here to listen online <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.podbean.com%2f&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7>.

Grab Your Sneakers, Polish Off Your Bike, and Get Ready...

Spring is here, which means you'll find many Chapter activities that not only provide outdoor fun, but raise critical funds that support ALS research and care. Like to walk? Find a Walk to Defeat ALS in a town near you. <http://www.alsphiladelphia.org/page.redir?target=https%3a%2f%2fsecure2.convio.net%2falsa%2fsite%2fSPageServer%2f%3fpagename%3dWLK_landing&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7> Like to bike? Join the Ride to Defeat ALS <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fweb.alsa.org%2fsite%2fTR%3ffr_id%3d13170%26pg%3dentry&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7>! Plus, you can find a host of other events that suit varied interests - from beef n' beers to car shows. Check out our Events Calendar <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsphiladelphia.org%2fcalendar-of-events&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7>.

Advocacy: Your Stories Make a Difference!

Throughout March, ALS advocates who reside within our service area spoke to state legislators in Pennsylvania and New Jersey. Their accounts left a memorable impression on our lawmakers. We need you to add your stories to upcoming advocacy days locally and in Washington, DC. Register here <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsa.org%2fadvocacy%2fadvocacy-day%2f&srcid=49779&srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7> for the national ALS Public Policy Conference and Advocacy Day or email Tony Heyl <mailto:[email-masked]?subject=I%20Want%20to Learn More about Advocacy> to meet local representatives at in-district visits.

Volunteer of the Month

A big thank you to Cosmas (Cos) Curry for rallying the Berwick community to fight ALS! When ALS ended his father's life, Cos was determined to help fight this devastating disease - one that gave his dad only months to live after diagnosis. Today he spearheads the Berwick Walk to Defeat ALS. Read his story here. <http://www.alsphiladelphia.org/coscurryvotm?srctid=1&erid=17492675&trid=41bac740-6bb6-4d0b-9249-97ebc7f270c7>

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
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