Subject: June ALS Newsletter
From: "The ALS Association Greater Philadelphia Chapter" <[email-masked]>
To: "R Biden" <[email-masked]>
Date: Thu, 28 Jun 2018 10:05:26 -0400

Thank You Phillies!
Last week, the Philadelphia Phillies raised $ 725,000 at the 2018 Phillies Phestival to Strike Out ALS. Since 1984, the Phillies have raised over $ 18 million for the ALS cause. All of us affected by ALS are grateful to the Phillies management, players, staff, and fans for all that they do to support ALS care and research. View Phestival pictures here <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fpg%2fALSPhiladelphia%2fphotos%2f%3ftab%3dalbum%26album_id%3d10156483806654281&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73> and be sure to share yours with us on social media @alsphiladelphia.
	 Your Stories are Needed NOW for ALS Advocacy
This week, legislators in Pennsylvania, New Jersey, and Delaware are finalizing their state budgets and are considering how much to fund ALS care in their states. The only way that legislators will make ALS a priority is if they hear from you before the end of the week. Send an email today <mailto:[email-masked]> to add your story and be an advocate for ALS families.
	 Continue to Support our Ride to Defeat ALS Teams
It was an incredible day in Wildwood, New Jersey as riders of all ages and abilities took part in the annual Ride to Defeat ALS. Thank you to everyone who helped raise over $ 100,000 so far through this uplifting event. You can still contribute to our ride teams and help them break their fundraising goals by donating online <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fweb.alsa.org%2fsite%2fTR%3ffr_id%3d13170%26pg%3dentry&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73>. View pictures here <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fpg%2fALSPhiladelphia%2fphotos%2f%3ftab%3dalbum%26album_id%3d10156466547214281&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73> and please be sure to share yours with us.
	 Volunteers of the Month
The Ride to Defeat ALS would not be what it is today without the support of our June Volunteers of the Month – Will and Jack Morey. For nearly 20 years, the Morey family has championed the annual bike ride by providing passes to Morey’s Piers for riders, assisting with an excellent ride end point, and giving ALS families a special day at the water park. Read more <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.alsphiladelphia.org%2fvolunteers-of-the-month-will-and-jack-morey&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73> about Will and Jack’s story.
	 Every Drop Adds Up: How the ALS Ice Bucket Challenge Continues to Spur Gene Discoveries
This August marks four years since the famous ALS Ice Bucket Challenge took over social media and changed the landscape for ALS research. The money raised from the Ice Bucket Challenge is continuing to lead to important gene discoveries as researchers invest in new innovations and technologies. Read the latest blog <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2falsadotorg.wordpress.com%2f2018%2f06%2f25%2fnew-review-focuses-on-the-connection-of-disturbances-in-rna-binding-proteins-to-als%2f&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73> about these breakthroughs and then send your story <mailto:[email-masked]> to show how Every Drop Adds Up.
	 Follow Us!
The Ice Bucket Challenge was a success because of the power of social media. Make sure to follow us on Facebook <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.facebook.com%2fALSPhiladelphia&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73>, Twitter <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2ftwitter.com%2falsphiladelphia%3flang%3den&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73>, YouTube <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.youtube.com%2fuser%2fALSPhiladelphia%2fvideos&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73> and Instagram <http://www.alsphiladelphia.org/page.redir?target=http%3a%2f%2fwww.instagram.com%2falsphiladelphia&srcid=50152&srctid=1&erid=17980818&trid=c0d9a8ac-4716-4cf4-86b2-7cfd23cf0e73>.

________________________________________

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260
Ambler, PA 19002
[email-masked] <mailto:[email-masked]>
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