Subject: Biopolitical Views & News: 23andNewMoney / CRISPR 2.0? / Black Stork Rises / Surrogacy in SF
From: Center for Genetics and Society <[email-masked]>
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Date: Fri, 16 Oct 2015 03:50:11 +0000

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October 15, 2015

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Talking Biopolitics with Robert Wilson and Milton Reynolds ( http://www.geneticsandsociety.rsvp1.com/s1978el93kZC )

Thursday, November 19 - 11am PT / 2pm ET / 18:00 GMT
In this Talking Biopolitics  ( http://www.geneticsandsociety.rsvp1.com/s155cfl93kZD )conversation, University of Alberta filmmaker Robert Wilson will be interviewed by Milton Reynolds from Facing History and Ourselves about this just-release documentary, Surviving Eugenics.

( http://www.geneticsandsociety.rsvp1.com/s1950el93kZE )

Talking Biopolitics on YouTube: George Annas interviewed by Lisa Ikemoto on Genomic Messages ( https://youtu.rsvp1.com/s1944el93kZF )

In case you missed the intellectually and politically stimulating conversation about George Annas's new book Genomic Messages: How the Evolving Science of Genetics Affects Our Health, Families, and Future, it's now online here ( https://youtu.rsvp1.com/s1548fl93kZG ).

San Francisco Bay Area events

Surviving Eugenics: Next up ( https://facebook.rsvp1.com/s150cfl93kZH ) in the Being Human in the Biotech Age film series is Surviving Eugenics ( http://eugenicsarchive.rsvp1.com/s1900el93kZI ), a just-released documentary about the history and ongoing significance of eugenics in Western Canada. The screening and discussion with filmmakers Rob Wilson and Nicola Fairbrother (joining us via video) takes place Tuesday, November 17, 4pm, 470 Stephens Hall, UC Berkeley.
Biotechnologies and Immigration: Biological Citizenship and the Use of DNA Testing for Family Reunification: Torsten Heinemann, Professor of Sociology, University of Hamburg will discuss ( https://facebook.rsvp1.com/s1928el93kZO ) an international research project on the use of DNA testing for family reunification in Europe and compare the situation in the US. Please join us on Tuesday, October 20, noon-1:30pm, 2538 Channing Way, Berkeley.

The CRISPR Germline Debate: Closed to the Public? ( http://www.geneticsandsociety.rsvp1.com/s19a0el93kZQ )

by Elliot Hosman
Recent CRISPR media coverage focuses on hype rather than engaging the ethical and social implications of the groundbreaking technology&mdash;even as many call for public inclusion in the genome editing debate.

CRISPR-Cpf1: Hype by Association ( http://www.geneticsandsociety.rsvp1.com/s15b8fl93kZS )

by Elliot Hosman
Amid Nobel Prize predictions for CRISPR-Cas9 research, a new CRISPR - associated protein takes the media and science community by storm, even as its utility remains unclear.

Big Money Heading for Consumer Genomics ( http://www.geneticsandsociety.rsvp1.com/s1590fl93kZU )

by Pete Shanks
Investors are now betting hundreds of millions of dollars that the direct-to-consumer testing business will become profitable.

Surrogacy as an Iceberg: 90 Percent Below Water ( http://www.geneticsandsociety.rsvp1.com/s19ccel93kZX )

by Emma Maniere
While agencies market surrogacy as a fulfilling &ldquo;journey,&rdquo; they also caution prospective consumers about ethical and financial pitfalls. These contradictory messages reflect the true complexity of commercial surrogacy.

Forgotten Stories of the Eugenic Age #4, Part 2: The Black Stork Rises: Dr. Haiselden&rsquo;s Celebrity and Public Controversy ( http://www.geneticsandsociety.rsvp1.com/s15d4fl93kZZ )

by Natalie Oveyssi
After Baby Bollinger&rsquo;s death under Dr. Haiselden&rsquo;s care, letter-writers flooded newspapers with both praise and criticism. Haiselden went on to co-write and star in The Black Stork, a film celebrating eugenic medicine.

Video Review: Talking Biopolitics ( http://www.geneticsandsociety.rsvp1.com/s1d391l93l01 )
[cites CGS and CGS fellow Lisa Ikemoto]

by Rebecca Dimond, BioNews
George Annas spoke with Lisa Ikemoto about his new book on genomic medicine and genetic testing.

Scientists Find Gene Editing with CRISPR Hard to Resist ( http://www.geneticsandsociety.rsvp1.com/s11210l93l03 )
[quotes Marcy Darnovsky and Pete Shanks]

by Cameron Scott, Healthline
CRISPR is so cheap and easy to use, we may be genetically engineering human embryos before we have time to decide if we should.

The Messy, Complicated Nature of Assisted Reproductive Technology ( http://www.geneticsandsociety.rsvp1.com/s111d0l93l06 )
[cites CGS's Marcy Darnovsky]

by J. Wesley Judd, Pacific Standard

A California court ART case shows that even when there is a contract, the issues are far from black and white.

List of Speakers for NAS Meeting on Human Gene Editing ( http://www.geneticsandsociety.rsvp1.com/s1d551l93l08 )

by Paul Knoepfler, Knoepfler Lab Stem Cell Blog
A preliminary list of speakers for the National Academies' international summit on human gene editing has emerged, showing a troubling lack of diversity.

Limits of Responsibility: Genome Editing, Asilomar, and the Politics of Deliberation ( http://www.geneticsandsociety.rsvp1.com/s1eed1l93l0b )

by J. Benjamin Hurlbut, Hastings Center Report
What justifies the notion that CRISPR has caught us off guard or that it is appropriate for experts to retreat into secluded spaces to define the parameters of public debate?

Designer babies crawl closer ( http://www.geneticsandsociety.rsvp1.com/s12c90l93l0e )

by Laurie Zoloth, Cosmos Magazine
Embryo engineering has been rejected by every ethics committee that has ever considered it.

After Asilomar ( http://www.geneticsandsociety.rsvp1.com/s1ed11l93l0g )

by Editorial, Nature News
Scientist-led conferences are no longer the best way to resolve debates on controversial research, and scientists who wish to self-regulate ignore public outcry at their peril.

Where in the world could the first CRISPR baby be born? ( http://www.geneticsandsociety.rsvp1.com/s12990l93l0i )

by Heidi Ledford, Nature News
Nature surveys the legal landscape of 12 countries with well-funded biological research and finds variety of bans on human genome editing in research or reproduction.

UNESCO Calls for More Regulations on Genome Editing, DTC Genetic Testing ( http://www.geneticsandsociety.rsvp1.com/s12a50l93l0l )

by Staff, GenomeWeb
The organization's International Bioethics Committee reaffirms its support for a moratorium on modifying the human germline.

Gene-edited 'micropigs' to be sold as pets at Chinese institute ( http://www.geneticsandsociety.rsvp1.com/s1ebd1l93l0n )

by David Cyranoski, Nature News
Originally designed as models for testing expensive drugs in smaller quantities, the pigs are now being marketed as customizable pets.

New CRISPR Protein Slices through Genomes, Patent Problems ( http://www.geneticsandsociety.rsvp1.com/s1e351l93l0p )

by Antonio Regalado, MIT Technology Review
With patent rights and Nobel Prize announcements pending, the Broad Institute's Feng Zhang reports the development of a new CRISPR gene editing enzyme.

Genes can&rsquo;t be patented, rules Australia&rsquo;s High Court ( http://www.geneticsandsociety.rsvp1.com/s1e211l93l0s )

by Michael Slezak, New Scientist
The decision is considered stronger than the similar one by the US Supreme Court.

A Tale of Do-It-Yourself Gene Therapy ( http://www.geneticsandsociety.rsvp1.com/s1e091l93l0u )

by Antonio Regalado, MIT Technology Review
An American biotech CEO of BioViva claims she is the first to undergo gene therapy to reverse aging, participating in an experiment that intentionally avoided approval processes.

Handheld DNA reader revolutionary and democratising, say scientists ( http://www.geneticsandsociety.rsvp1.com/s12110l93l0w )

by Ian Sample, The Guardian
The $1,000 device is not designed to read human genomes, but it can quickly identify bacteria and viruses, and spot different gene variants in sections of human genetic code.

New Psychiatric DNA Testing Is Unproven Ground ( http://www.geneticsandsociety.rsvp1.com/s1e591l93l0y )

by Susan Donaldson James, NBC News
Using genetic testing to determine the best course of psychiatric medications is an unproven proposition that may pose risks to patients' health.

Who has your DNA&mdash;or wants it ( http://www.geneticsandsociety.rsvp1.com/s136d0l93l0B )

by Jocelyn Kaiser, Science
More and more groups are amassing computer server-busting amounts of human DNA. At least 17 biobanks hold, or plan to hold, genomic data on 75,000 or more people.

Born that way? &lsquo;Scientific&rsquo; racism is creeping back into our thinking. Here&rsquo;s what to watch out for. ( http://www.geneticsandsociety.rsvp1.com/s13450l93l0D )

by W. Carson Byrd & Matthew W. Hughey, Washington Post
Recent studies show the media and white communities embracing the idea of racial genetic differences, twisting history and circumventing effective policy strategies.

What 2,500 Sequenced Genomes Say about Humanity&rsquo;s Future ( http://www.geneticsandsociety.rsvp1.com/s1f5d1l93l0F )

by Lizzie Wade, Wired
Genomics has gone from being a "race-free" science to being a "race-positive" one.

Gay or Straight? Saliva Test Can Predict Male Sexual Orientation ( http://www.geneticsandsociety.rsvp1.com/s13150l93l0H )

by Jessica Hamzelou, New Scientist
Many scientists have expressed caution over the results, and concerns over potential misuse have led the lead researcher to quit the project entirely.

No, Scientists Have Not Found the 'Gay Gene' ( http://www.geneticsandsociety.rsvp1.com/s13010l93l0K )

by Ed Yong, The Atlantic
A widely reported study purporting to find epigenetic marks associated with sexual orientation in men is an underpowered fishing expedition that used inappropriate statistics.

Ancestry.com is talking to the FDA about using DNA to estimate people's risk of disease ( http://www.geneticsandsociety.rsvp1.com/s13290l93l0M )

by Arielle Duhaime-Ross, The Verge
After the FDA regulated 23andMe, another big player in the personal genomics business who has focused on genetic ancestry is looking to merge into providing lucrative health information.

Can 23andMe have it all? ( http://www.geneticsandsociety.rsvp1.com/s1f311l93l0O )

by Kelly Servick, Science
The company has made about 30 deals with biotech and pharma companies, and plans to hire 25 scientists in the next year to begin drug discovery efforts of its own.

'Great Pause' Among Prosecutors As DNA Proves Fallible ( http://www.geneticsandsociety.rsvp1.com/s1fb91l93l0Q )

by Martin Kaste, NPR
The revelation that Texas labs have been using outdated protocols to analyze mixed DNA samples has led to concerns about thousands of criminal cases.

Advances in DNA Testing Could Put Thousands of Texas Cases in Legal Limbo ( http://www.geneticsandsociety.rsvp1.com/s13a10l93l0S )

by Meagan Flynn, Houston Press
Problems with analyses of testing with mixed DNA samples has cast doubt on many DNA-based criminal convictions in Texas.

DNA At the Fringes: Twins, Chimerism, and Synthetic DNA ( http://www.geneticsandsociety.rsvp1.com/s13890l93l0U )

by Erin E. Murphy, The Daily Beast
DNA tests are thought to be conclusive, but our genetic material acts in mysterious ways. Chimerism, for example, may "undermine the very basis of the forensic DNA system."

Prop 47 Could Purge DNA Database ( http://www.geneticsandsociety.rsvp1.com/s1fd51l93l0X )

by Kristina Davis, The San Diego Union-Tribune
Sooam Biotech, founded by scientific pariah Hwang Woo Suk, has A California ballot initiative reduced certain low-level, nonviolent felonies to misdemeanors, but the fate of the consequent DNA collection is unclear.

DARPA Gives MIT Lab $32 Million to Program Living Cells ( http://www.geneticsandsociety.rsvp1.com/s13cd0l93l0Z )

by Alexandra Ossola, Popular Science
The contract will allow synthetic biology and computer scientists to join forces with chemical, pharma, food, energy, agriculture, and biotech companies. What DARPA hopes to gain remains vague.

Sky-high price of new stem cell therapies is a growing concern ( http://www.geneticsandsociety.rsvp1.com/s14390l93l11 )

by Michael Hiltzik, Los Angeles Times
Late-stage clinical trials of two treatments backed by California's $6-billion stem cell program are underway. Will Californians be able to afford them?

First 'in womb' stem cell trial to begin ( http://www.geneticsandsociety.rsvp1.com/s18211l93l13 )

by James Gallagher, BBC
A UK clinical trial injecting fetal stem cells into babies still in the womb will attempt to lessen symptoms of an incurable brittle bone diseases.

Feminists, get ready: pregnancy and abortion are about to be disrupted ( http://www.geneticsandsociety.rsvp1.com/s181d1l93l16 )

by Eleanor Robertson, The Guardian
A clinical trial of uterine transplants will begin soon in the UK. Are artificial wombs on the horizon?

UK Womb Transplants: 5 Ethical Issues ( http://www.geneticsandsociety.rsvp1.com/s14550l93l18 )

by Rachael Rettnerr, Live Science
The procedure would expose both patient and developing fetus to autoimmune suppressants, use uteruses from deceased donors, and require that clinical patients have a "long-term partner."

Womb transplants given UK go-ahead ( http://www.geneticsandsociety.rsvp1.com/s17f90l93l1a )

BBC
Ten women will be chosen for a clinical trial that will transplant a donated uterus, monitor organ acceptance for a year, and initiate up to two IVF pregnancies before removing the transplant.

Why the Majority of Sperm Donations in Canada Are from the U.S. ( http://www.geneticsandsociety.rsvp1.com/s1be11l93l1c )
[Canada]

by Jim Brown, Canadian Broadcasting Corporation
Only 5-10% of donated sperm in Canada is from domestic donors; the majority comes from US providers who, unlike their counterparts north of the border, are paid.

30k-60K US Sperm and Egg Donor Births Per Year?  ( http://www.geneticsandsociety.rsvp1.com/s1bc91l93l1e )

by Wendy Kramer, Huffington Post
For 28 years the estimated number of children born via donor insemination has remained 30,000. But there is no reliable information in the public domain.

Informed Consent for Egg Donors Won&rsquo;t Exist Unless We Track Donors&rsquo; Health ( http://www.geneticsandsociety.rsvp1.com/s17950l93l1h )

by Judy E. Stern, Our Bodies, Our Blog
Recent academic articles raise concerns that conflicts of interest may result in egg providers having an incomplete understanding of the risks of eggs retrieval procedures.

Next-Generation Prenatal Genetic Tests Are Turning Fate Into Choice ( http://www.geneticsandsociety.rsvp1.com/s1b8d1l93l1j )

by Michael White, Pacific Standard
The new tests mean that many more women are grappling with the decision of whether to continue or end a pregnancy based on genetic information.

Women Find a Fertility Test Isn't as Reliable as They'd Like ( http://www.geneticsandsociety.rsvp1.com/s1ba51l93l1l )

by Eliza Barclay, NPR
Ovarian reserve tests are often ambiguous and can be misinterpreted; some fertility specialists worry that many women will be misled by their results.

What's Missing From Ontario's IVF Policy?  ( http://www.geneticsandsociety.rsvp1.com/s17bd0l93l1n )

by Vanessa Gruben, Ottawa Citizen
The province should require collection of anonymized data on IVF use, success rates, and complications; it should also address the information needs of children conceived via donor gametes.

Ontario to Cover In-Vitro Fertilization Treatments ( http://www.geneticsandsociety.rsvp1.com/s17350l93l1p )
[Canada]

by Rob Ferguson, The Star
Ontario has become the second Canadian province to cover some of the costs of IVF.

Why Some Parents Choose to Have a Deaf Baby ( http://www.geneticsandsociety.rsvp1.com/s17210l93l1s )

by Rich Wordsworthn, Motherboard
Some deaf parents ask, "What&rsquo;s wrong with being deaf, anyway? I&rsquo;m happy to be who I am."

Disgraced Scientist Clones Dogs, and Critics Question His Intent ( http://www.geneticsandsociety.rsvp1.com/s17090l93l1u )

by Rob Stein, NPR
Sooam Biotech, founded by scientific pariah Hwang Woo Suk, has cloned over 600 dogs for $100,000 each. The process works only one-third of the time and is risky.

[Australia] Stem cell experts urge ethical debate over embryo creation ( http://www.geneticsandsociety.rsvp1.com/s1b111l93l1w )

by Anna Salleh, ABC Science
Scientists pursuing basic research with pluripotent stem cells may be able to grow a cell structure that would resembles a three- to four-week embryo within just a couple of years.

GMO Propaganda and the Sociology of Science ( http://www.geneticsandsociety.rsvp1.com/s17590l93l1y )

by Kristine Mattis, Counterpunch
The false association between anti-GMO and anti-science sentiment obscures the lack of scientific consensus about the health and environmental effects of genetically modified crops.

Who has your DNA&mdash;or wants it ( http://www.geneticsandsociety.rsvp1.com/s1a6d1l93l1B )

by Jocelyn Kaiser, Science
More and more groups are amassing computer server&ndash;busting amounts of human DNA. At least 17 biobanks hold, or plan to hold, genomic data on 75,000 or more people.

Can 23andMe have it all? ( http://www.geneticsandsociety.rsvp1.com/s1a451l93l1D )

by Kelly Servick, Science
The company has made about 30 deals with biotech and pharma companies, and plans to hire 25 scientists in the next year to begin drug discovery efforts of its own.

New CRISPR Protein Slices through Genomes, Patent Problems ( http://www.geneticsandsociety.rsvp1.com/s165d0l93l1F )

by Antonio Regalado, MIT Technology Review
With patent rights and Nobel Prize announcements pending, the Broad Institute's Feng Zhang reports the development of a new CRISPR gene editing enzyme.

( https://networkforgood.rsvp1.com/s1a151l93l1H )

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