Subject: Biopolitical Views & News: Human Gene Editing FAQs / CRISPR and Eugenics / Genetic Surveillance / Eugenic Infanticide
From: Center for Genetics and Society <[email-masked]>
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Date: Fri, 30 Oct 2015 15:20:28 +0000

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October 30, 2015

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Talking Biopolitics with Robert Wilson and Milton Reynolds ( http://www.geneticsandsociety.rsvp1.com/s1cc83lfxBpd )

Thursday, November 19 - 11am PT / 2pm ET / 18:00 GMT
In this Talking Biopolitics  ( http://www.geneticsandsociety.rsvp1.com/s1c983lfxBph )conversation, University of Alberta filmmaker Robert Wilson will be interviewed by Milton Reynolds of Facing History and Ourselves about the just-released documentary, Surviving Eugenics.

( http://www.geneticsandsociety.rsvp1.com/s10a82lfxBpl )

Talking Biopolitics on YouTube: George Annas interviewed by Lisa Ikemoto on Genomic Messages ( https://youtu.rsvp1.com/s10342lfxBpq )

In case you missed the intellectually and politically stimulating conversation about George Annas's new book Genomic Messages: How the Evolving Science of Genetics Affects Our Health, Families, and Future, it's now online here ( https://youtu.rsvp1.com/s1c403lfxBpz ).

San Francisco Bay Area event

Surviving Eugenics: Next up ( https://facebook.rsvp1.com/s115c2lfxBpG ) in the Being Human in the Biotech Age film series is Surviving Eugenics ( http://eugenicsarchive.rsvp1.com/s1d283lfxBpL ), a just-released documentary about the history and ongoing significance of eugenics in Western Canada. The screening and discussion with filmmakers Rob Wilson and Nicola Fairbrother (joining us via video) takes place Tuesday, November 17, 4pm, 470 Stephens Hall, UC Berkeley.

Human Gene Editing Frequently Asked Questions  ( http://www.geneticsandsociety.rsvp1.com/s1da03lfxBpR )

by Center for Genetics and Society
Should we as a society condone the genetic modification of future human beings? Here we take on some common questions about gene editing the human germline.

Gene Editing and Eugenics (Opinions Vary) ( http://www.geneticsandsociety.rsvp1.com/s1d9c3lfxBpW )

by Pete Shanks
A recent commentary on the UK law allowing clinical use of mitochondrial replacement celebrates it as a benign form of eugenics. Is there such a thing?

Forgotten Stories of the Eugenic Age #4, Part 3: The Blurry Boundaries of Eugenic Infanticide ( http://www.geneticsandsociety.rsvp1.com/s1a383lfxBq0 )

by Natalie Oveyssi
The final entry of the three-part examination of Dr. Harry Haiselden, Baby John Bollinger, and the practice of eugenic infanticide explores the legacy of Haiselden&rsquo;s career and its meaning for the rights of individuals with disabilities.

Genetic Surveillance: Consumer Genomics and DNA Forensics ( http://www.geneticsandsociety.rsvp1.com/s1a043lfxBq5 )

by Elliot Hosman
As more biotech companies move to &ldquo;cash in on the genome,&rdquo; we need to connect the conversations on personal genomics, DNA forensics, immigration, and biological discrimination.

What's Your DNA Worth? The Scramble to Cash In On The Genome ( http://www.geneticsandsociety.rsvp1.com/s16582lfxBq8 )
[Cites CGS's Marcy Darnovsky]

by Alex Lash, Xconomy
Vast pools of genomic data may unlock health secrets, but what is the risk of "sharing" our data for biotech corporate profits, and is it greater than the nebulous future rewards?

NAS Human Gene Editing Meeting: Agenda & Public Participation ( http://www.geneticsandsociety.rsvp1.com/s19c43lfxBqe )

by Paul Knoepfler, The Niche
The National Academies have released a draft agenda for the upcoming summit on human gene editing.

First Gene-Edited Dogs Reported in China ( http://www.geneticsandsociety.rsvp1.com/s19803lfxBqj )

by Antonio Regalado, MIT Technology Review
An extra-muscular beagle has been created through CRISPR-Cas9 genome engineering. Are we on our way to customizing the DNA of our pets, and children?

Who Owns Molecular Biology? ( http://www.geneticsandsociety.rsvp1.com/s15b02lfxBqn )

by Yarden Katz, Boston Review
A researcher at the Broad Institute explores the patent issues surrounding CRISPR-Cas gene editing, and argues for a more just sharing and distribution system for scientific research.

Could Having Your DNA Tested Land You in Court? ( http://www.geneticsandsociety.rsvp1.com/s15102lfxBqv )

by Claire Maldarelli, Popular Science
Police in Idaho accused a man of an unsolved murder via partial DNA matching based on DNA records obtained from Ancestry.com.

For Some Refugees, Safe Haven Now Depends on a DNA Test ( http://www.geneticsandsociety.rsvp1.com/s15542lfxBqy )

by Katie Worth, PBS Frontline
The US is requiring refugees to prove they're related through a DNA test, causing worries about an unreasonably narrow genetic definition of family.

23andMe Will Resume Giving Users Health Data ( http://www.geneticsandsociety.rsvp1.com/s14442lfxBqE )

by Andrew Pollack, The New York Times
Two years after a forced hiatus from providing consumers with genetic health probabilities, the FDA has cleared 23andMe to provide carrier status and lactose intolerance tests.

Fresh Territory for Bioethics: Silicon Valley ( http://www.geneticsandsociety.rsvp1.com/s14282lfxBqL )

by Susan Gilbert, Bioethics Forum The Hastings Center

Biomedical researchers and Silicon Valley are increasingly looking to each other for access to human subjects and new ventures, raising questions about informed consent and the security of private genetic data.

Forensic DNA Evidence Is Not Infallible ( http://www.geneticsandsociety.rsvp1.com/s18b83lfxBqP )

by Cynthia M. Cale, Nature
Improved understandings of secondary DNA transfer raise questions about the accuracy of DNA analysis and subsequent criminal convictions.

Cops Want To Look At 23andMe Customers&rsquo; DNA ( http://www.geneticsandsociety.rsvp1.com/s18903lfxBqV )

by Stephanie M. Lee, BuzzFeed
The FBI and other agencies have asked for &mdash; and been denied &mdash; five users&rsquo; data, according to a new transparency report on the company's website, and chain of custody could be a legal obstacle for future requests.

American Surrogate Death: NOT the First ( http://www.geneticsandsociety.rsvp1.com/s19082lfxBr4 )

by Mirah Riben, HuffPost Blog
Brooke Lee Brown's death "underscores the ethical problem with asking women to serve as surrogates for non-medical reasons." Is death simply an occupational hazard in the surrogacy industry?

[India] Blanket ban likely on NRIs, PIOs, foreigners having kids through surrogacy ( http://www.geneticsandsociety.rsvp1.com/s1ae02lfxBrb )

The Economic Times
A draft bill limits intended parents to Indian residents, allows single and divorced women to contract as surrogates, and addresses healthcare for women during surrogacy.

India Wants to Ban Birth Surrogacy for Foreigners ( http://www.geneticsandsociety.rsvp1.com/s16943lfxBri )

by Nida Najar, The New York Times
A draft bill would exclude foreigners from accessing commercial surrogacy in India.

[UK] Women "are being given false hope" over freezing eggs ( http://www.geneticsandsociety.rsvp1.com/s1ab02lfxBrn )

by Harriet Meyer, Nature News
Fertility experts say the UK agency that regulates fertility treatments is not doing enough to make clear the success rates of freezing and banking their eggs.

Egg Donors Challenge Pay Rates ( http://www.geneticsandsociety.rsvp1.com/s16203lfxBrr )

by Tamar Lewin, The New York Times
A judge has certified a federal class action lawsuit by women who argue that ART industry guidelines that limit compensation for eggs to $10,000 constitute "illegal price-fixing."

Four Synthetic Biology Inventions That Flummox the Feds ( http://www.geneticsandsociety.rsvp1.com/s161c3lfxBrw )

by Kelly Servick, Science
As researchers develop ways to genetically engineer living organisms, studies highlight the lack of clarity about which US regulatory agency would be charged with approval or oversight.

Expanding Notions of Discrimination: Genetic Information & Competitive Sports ( http://www.geneticsandsociety.rsvp1.com/s17743lfxBrA )

by Craig Klugman, Bioethics.net
The International Olympic Committee has new hormonal guidelines to segregate athletes into two competitive sex categories.

Making Indigenous Peoples Equal Partners in Gene Research ( http://www.geneticsandsociety.rsvp1.com/s1b502lfxBrF )

by Ed Yong, The Atlantic
After leaving a partnership with NIH in 2003, the Akimel O&rsquo;odham (Pima) tribe is retaining control of their bio samples and shaping the goals of a diabetes project with genomic researchers.

Indigenous peoples must benefit from science ( http://www.geneticsandsociety.rsvp1.com/s1b142lfxBrI )

by Dyna Rochmyaningsih, Nature News
The triple helix of science, the private sector, and government have driven the world&rsquo;s economy since the Industrial Revolution, but to drive sustainable development, science must empower rural communities &mdash; not just serve industry and governments.

Handheld DNA reader revolutionary and democratising, say scientists ( http://www.geneticsandsociety.rsvp1.com/s17243lfxBrM )

by Ian Sample, The Guardian
The $1,000 device is not designed to read human genomes, but it can quickly identify bacteria and viruses, and spot different gene variants in sections of human genetic code.

( https://networkforgood.rsvp1.com/s1b882lfxBrT )

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